I'm not sure whether it's right to base an ontology on a grass-roots tag, but given the success of #bcsm
I think it may resonate well with patients, and #hcsm
has already set the stage for use.
My proposal is to designate hashtags ending in -sm as "open channels" that permit all stakeholders to converse in an open forum. It would be for a general disease category, flexible enough to promote community even though not everyone's experience is the same.
These open channels may attract clinicians to engage understanding that this open channel is for conversation, learning, advocacy and general support. Tweetups may or may not develop, that takes a critical mass and come with some caveats.