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http://www.mldse.org/2016/11/giving-tuesday.html?m=1 #GivingTuesday is upon us and in the spirit of giving, we hope that you will consider supporting Midcoast Lyme Disease Support & Education (MLDSE) and our efforts in the many ways that we raise awareness, educate communities and support those afflicted with Lyme and Tick-borne disease with our free resources.

Did you know that 100% of all donations to #MLDSE go to local Lyme Disease Awareness efforts?

Did you know that 100% of donations to the Midcoast Lyme Aide fund stay local helping local people get the help that they need?

Did you know that members of #MLDSE donate 100% of their time and energy to helping others with free resources find their way back to health??
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THIS IS HUGE!!! We can VOTE for a reliable diagnostic test for Lyme Disease! XPrize is doing their annual fundraising contest based off proposals (the team with the most votes wins and gets funded) and this team has proposed to: "develop a Lyme disease diagnostic that demonstrates significant specificity and sensitivity; detects Borrelia burgorferi and other Lyme disease-causing Borrelia genospecies; is administered at point of care (e.g., at or near where the patient is located); delivers a positive/negative result within one hour (60 min); and delivers results that are understandable by a lay person."

Can you imagine?! Knowing definitively if you have Lyme Disease within 60 MINUTES!!

Please VOTE! It's a one-and-done click, no forms or information to fill out or submit. This could be the change we're looking for. Lyme Disease took me from marathon runner to needing a wheelchair to leave the house. It's been over 5 years of treatment with the top specialists in the world, and I'm still struggling to walk more than 15 minutes every day. A reliable diagnostic test can help millions going undiagnosed from having this experience with late-stage Lyme.

Please vote AND SHARE with friends/family if this cause calls to you! Thank you! 

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When I first became ill, I prayed to learn the reason. Why had this happened to me? What was I supposed to learn? How would this one day be a blessing? I told people confidently that all things happen for a reason, but as the years went by and I got too sick to leave my home, I stopped believing it.
Now, more than five years after going from a marathon runner to needing a wheelchair to function in society, I can say with great confidence that what we discover in the depths of our journey holds more value than we could have ever dreamed of when we skipped happily at the shore.
To those who are struggling out there today, know that just because your world is dark doesn't mean there isn't beauty at your fingertips. Awaken the child-like curiosity we've learned to forget, surrender to the depth, and prepare to discover treasures that could never be found in the shallows.
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Happy Sunday, everyone! I just came back from a mind-blowing four week excursion to California, and between lots of sun and regular old Lyme life, I used this trick every day to stay pain-free (and smelling sweet!) Any tricks you use to combat head pain naturally? Let us know!

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To all my NY members fired up to make change happen with NY Lyme Legislation: This is how!

The Lyme Action Network recently sent a letter on behalf of the victims of Lyme disease to the office of Eric T. Schneiderman, Attorney General of New York State. Our correspondence complained about the extraordinary discrimination to which Lyme patients are subjected, particularly in terms of the routine denial by the insurance companies to cover treatment for Lyme disease.

We received a response from the AG's office:

The New York State Attorney General's office requests that Lyme patients communicate DIRECTLY with the Attorney General's Office to describe their specific experiences in trying to get insurance coverage for the treatment of Lyme and other TBD's.

Please use this online form:
https://www.ag.ny.gov/health-care-complaint-form?wssl=1

OR you may use this printable form that you can mail:
https://www.ag.ny.gov/sites/default/files/pdfs/complaints/Health_Care_Complaint_Form.pdf
Mail to: State of New York, Office of the Attorney General, HEALTH CARE BUREAU, The Capitol, Albany, NY 12224-0341.

New York's Attorney General is concerned about unfair insurance practices. His office has no way to gauge the scope of this problem and the impact on people's lives except through YOUR response to this invitation. It is critically important that EVERYBODY in New York who has been denied Lyme disease treatment coverage by an insurance company, or who has not been able to see an ILADS doctor because you can't afford treatment because that doctor doesn't take insurance (because the claims will be denied), file a complaint describing your story.

We need to prove to the Attorney General that this is not a small problem. It's a huge problem, and we need Attorney General Schneiderman to investigate this institutionalized discrimination, and take steps to dismantle this closed, biased, and discriminatory practice.

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Finally kicked lymes ass!! Feeling great running hiking etc... I have a new respect for ticks and people that suffer from tick born diseases.
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