Addressing the unmet needs of HS patients is the singular purpose of our growing organization. Our programs and projects seek to improve the quality of life for patients worldwide. Helping to bolster public awareness through educational publishing across the Internet, Print, and Social Media is what we excel at.
Advocating for proper patient care and treatment in Healthcare is an important concern of ours as an organization as well. Our activism efforts are rooted in calling attention to the fragmented Healthcare circumstance that most HS patients are challenged with. In addition, within a self-advocacy and patient support construct, helping patients find access to much-needed Precision medicine (PM), Evidence-based medicine (EBM), proper Coordination of Care, and Digital Health are also areas where we seek to help.
Our efforts include political and legislative activism, patient storytelling for awareness, creative videography, documentary film work, live webinars, big data research, and patient conferences. Continually new efforts are being planned for and executed.
Learn More: http://hsawareness.org