Overview of the Practical Implications

1. Identify the most important things that if implemented by nurses could
improve patient care.
a. Continued support;
b. Provision of relevant information (written & digital);
c. Awareness and understanding surrounding the disease;
d. Promote holistic family-centred care through support, guidance and counselling

2. Please also provide a brief description of the relevant strategies that can be used by nurses and of course support with relevant in-text referencing.
a. Beading program
i. Caregivers were surveyed in regards to a beading program for
children implemented by nursing staff. Children received a
bead as acknowledgment and reward of their bravery for each
treatment/stay in hospital;
b. Specialist liaison nurse program:
i. Highly valued by parents
c. Support groups
f. Informative information to be given to parents
i. Information sessions
ii. Posters

- Introduction (150w), Annette
- Rationale (200w), Demi
- Overview of research evidence, Theme 1, 2 and 3 (300w), Lani
- Overview of practical implications (200w), Kayla
- Conclusion (150w), Sarah
- Poster, Stephanie
- Check APA referencing
- Edit
- Submit

Post has attachment
Found some examples of posters
Photo

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Photo

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Feeding an infant with CHD

infants with CHD will not gain weight like normal children
leads to feelings of frustration for the mother
CHD infants will gain weight slowly - an eight once to a one pound gain in a month- this is an acceptable weight gain for an infant with CHD

tips on how to feed a baby with CHD

mothers will need to be flexible with their feeding methods and schedules.
some babies might require feeding supplements in their formula or breast milk.

some infants may require a feeding tube

babies with CHD often do best when being fed little and often
infants will tire fast

avoid giving the infant water- as it hold no calories
an infant with CHD may have juice after 4 months

best to give any medicines before feedings
use of syringe and dropper
never any medication with formula
if the infant vomits after taking medications- do not re medicate till next scheduled time;

Prevent infants with good hygiene
good nutrition
use common sense
frequent hand washing during cold and flu session
influenza vaccine

care of family and child with CHD
prepare the child and their family for upcoming and on going operations
help the families to adjust to the disorder
help the families cope with effects of the disorder- educate them on CHD

some more information that I believe might work for the poster

information fro Health talk. org

problems with coping/ causes of stress and anxiety

1) days of negative thoughts
2) hard to plan for their child's future
3) hard to be optimistic about another heart surgery for an infant

response
1) help the parents to focus on their child first and the heart condition second
2) its important not to treat the children as disabled, or being to over protective as they grow.


caregiver stress
1) feeling overwhelmed
2) strong feelings of being alone and isolated from everything
3) sleeping to much or too little
4) gaining or losing too much weight
5) becoming easily angered or irritated

Suggestions for parents
Become educated on child's illness
offer local resources and programs to help assist communication between the family and co-parent about their feelings
offer names of support groups
encourage a daily routine
take one moment at a time
tell the parent it is ok to look after yourself


Hello group 6

I have looked at some research other than my AB. please give me feed back if it is right for Part B

Coping strategies of parents with chronic ill children hospitalized in educational hospitals, Ahvaz-Iran page 5813-5825

Mahin Ghoibizadeh et al (I post all if used)

coping strategies of parents with chronic ill children.

its a cross sectional study that was conducted in two hospitals, using 252 parents. 150 mothers, 102 fathers of 150 children that had a chronic disease.

Parents blame themselves for their child illness, mass feelings of guilt.

the family system needs efficient coping strategies in order to maintain an internal balance. they need to adapt to new circumstance and address the new conflicts and tensions.

coping.
conscious efforts are used to try and reduce the physical, psychological and social harm of the stressful situation.

working to facilitate an interaction between the parents and the ill child.

most common types of coping strategies used by families against stress
1) avoidance, allows the family to function as normal
2) problem-focused -emotion oriented avoidant strategies

most fathers used the problem focused strategy
mothers - emotion oriented avoidance coping.



Parenting styles, stress and coping in mothers with children with CHD.

Ljubica et al (2009)

CHD complex disease
result of the dysfunctional embryology of the heart structures in various period of gestation

1% of babies are born with CHD
75% will need surgical intervention

How CHD effects the family as a whole system

its distress for the child and their whole family
the family dynamics are interrupted

stress
management of CHD involves repeated procedures and hospitalization
causes
anxiety
burden
irritability
dissatisfaction
tension
fatigue
concern



parenting styles

parents will react in different ways towards their child with CHD
reflects on the process of child parent attachment

authoritarian- borders without freedom
authoritative - freedom but use of borders
permissive freedom without borders

some quantitative data

the mothers of children with CHD showed statistically significant practice of authoritarian parenting style

more greater use of denial as a coping strategy

fathers showed higher score on planning focus and venting on emotions




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