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I would like to ask #Gastroparesis Warriors out there for their Progressional Timelines. I know it's not scientifically accurate, because our memories aren't and I do not have access to medical records. I do, however, want to find some kind of link that connects us all. If I publish the results in my blog, I never know who is reading it, and it could lead to more research, better research, and maybe better treatment options. Who knows what it could lead to? But, I would love to try and do this. I've been working on this for 5 years but had it sitting on the back burner because life got in the way:

http://www.emilysstomach.com/2013/05/progressional-timeline-of-gastroparesis.html

#gpawareness #gp #GastroparesisAwareness #GPTimelines #EDS #Chronicillness #invisibleillness

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Please keep sending me your emergency room stories, as it might touch someone who works in the medical field. A lot of people who work in the medical field read my log and share it to new patients. I was surprised to learn that United Health gives out my blog as a "telephonic recess." So, you may touch a life, stop someone from feeling like it's all in their head.

If you would like to share your ER story and/or your Story of Hope, please email it to me: emilysstomach@gmail.com

Examples of Stories of Hope (if you want to include a photo:

http://emily-scherer.squarespace.com/gp-stories/

Please let me know if you want the emergency room stories you send in to include your first name and last initial, if you want a made up name, and so forth. If you want to you use your name and feel comfortable sending me a picture, please do so! It would be nice to put a face wit a name in my article.

Thank you in advance for being a #GPHero.

#TogetherWeWillMakeADifference #GP #GPEmergencyRoomVisits #Gastroparesis #GPAwareness #GPLife #GastroparesisAwareness #GPHeroes #EmilysStomach #DTP #ChronicIllness #invisibleillness #WeNeedACure4GP


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emilysstomach@gmail.com

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PLEASE SHARE: One of my best friends inspired me to do something a bit outside of the box and different - so I did something thinking.

I have made a message board completely about Gastroparesis and/or chronic, invisible illnesses.

It has several thread subjects already, like the ER & Stories of Hope projects I'm working on. It has a place to critique doctors, ask questions about diagnoses, and is a great way to help others. There is nothing else about GP on this site, so please help me change that.

To join my channels: https://join.slack.com/t/emilysstomach/shared_invite/enQtNDAyMDExOTgyMDY0LTMwNGU4NzhjNTExYzJmNWFlMzdlZGU5ZWUyZWQxZTUwOWRkNGMwYTczMjVjNjc4NGI0ODE4M2IzYzUxZTk3NzE

Think of it like email and email threads without the email part. That way, if I'm working on a project I can keep it to that subject on this site. If someone else is working on there project then we can all comment on that thread as well. It's just a way to keep all the subjects together and discussions together so that you don't have to search constantly for the subject that was discussed.

There is also a phone app for it!

https://emilysstomach.slack.com

So, let's work together on this thread to not only have a good time, but to help those who are struggling. I mean, not everyone is on Facebook or, if they're like me, they're too tired to be on Facebook most of the time.

This is also for people who want to learn about gastroparesis and their loved ones.

This is what Slack is: http://slack.com/features
Features
Features
slack.com

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By the end of next month, I will be downsizing and combining my #Gastroparesis groups. When I was running a group of 15,000 people, all of the individual groups made sense. However, since I'm not doing that anymore, I want to condense them down to about 9 or 10 groups.

However, I wanted to make this group for the longest time and it will be one of the few I am keeping. My friend had a group like this, but it is no longer around. I thought it might help other people suffering from invisible and/or chronic illnesses to find a doctor. The doctors listed in this group by the members are not only GI doctors...we are hoping to have all different kinds of doctors with reviews.

Please share this group because the more members we can get, the more doctors can be added to this group from different states:

https://www.facebook.com/groups/findandratedoctors/

#gastroparesis #gp #EmilysStomach #GPAwareness #GastroparesisAwareness #DTP #ChronicIllness #invisibleillness #WeNeedACure4GP

This is the third part of a series I wanted to put together to address drug seekers vs chronically ill patients. People with invisible, chronic illnesses are treated like drug seekers in the ER, even though those people go to the ER for help for dehydration, and other serious issues. Because they are labeled as drug seekers off of the bat, serious medical issues are missed.

In my personal experience, they have even refused to do tests on me, even though I was in the ER vomiting up blood IN FRONT OF THE DOCTOR, the doctor still treated me as a drug seeker. This stigma has GOT to end!

If we feel terrible enough to go to the ER, we usually do not have the energy to argue with the doctors to even try to get adequate healthcare. We should NOT have to do that! There are still nurses and doctors who do not think GP is even real - I had a friend of a friend, who is an ER nurse, tell me that GP wasn't real and people only said they had GP to get pain meds...I was floored. AND SHE WORKS AT AN ER HERE!

I am still accepting your ER stories. Please send them to my email address at: emilysstomach@gmail.com.

I know different doctors read my blog, Mayo uses my blog, and United Healthcare uses my blog - so maybe if I can put all of these stories together, it may make doctors rethink how they treat patients in the ER.

My biggest thing is - what if I was a drug addict? They can't have serious medical emergencies? None of this makes any sense to me.

http://www.emilysstomach.com/2018/07/invisible-emergencies-series-part-three.html

#gastroparesis #GP #ER #GPAwareness #Invisibleillness #Chronicillness #StoptheStigma #NOTDrugSeekers #NeedBetterHealthcare #DoctorsShouldNOTJudge

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I have a multi part series that I'm working on about people with invisible/chronic illnesses (gp) who are mistreated at the Emergency Room because doctors think they are drug addicts. Either you can argue with the doctor, which may or may not help, or have someone go with you to back you up. Doctors should not judge - they've taken an oath to help people. If you would like to share your ER experiences, please email your stories to me at: emilysstomach@gmail.com.

I want to shed some light on how we are treated because it's not right. What if we were drug addicts? Can they not have medical emergencies?


Invisible Emergencies Series, Part One - The Personal Story Perspective:

http://www.emilysstomach.com/2018/06/invisible-emergencies-series-part-1.html


Invisible Emergencies Series, Part Two - The Chronically Ill's Perspective:

http://www.emilysstomach.com/2018/06/invisible-emergencies-series-part-two.html


Invisible Emergencies Series, Part Three - The Danger of Treating ER Patients as Drug Addicts (Research Portion):

http://www.emilysstomach.com/2018/07/invisible-emergencies-series-part-three.html

These contain research and sources.


#gastroparesis #gp #EmilysStomach #GPAwareness #GastroparesisAwareness #DTP #ChronicIllness #invisibleillness #WeNeedACure4GP

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Please, send your Emergency Room stories my way, because you never know who might be reading my blog or how many lives your stories may touch.

My Email: emilysstomach@gmail.com

I would like to include as many stories as I can for this series because everyone deserves to have their voices heard! I want healthcare professionals to know that not everyone with chronic pain and/or a chronic/invisible illness is a drug seeker. Our pain is very real and sometimes, we need the extra help of the ER to get it down to a more manageable level.

I also want doctors to read this and realize we are more than just statistics, we ARE people too! If one healthcare provider reads this and we can reach ONE person, then we might cause ripples that will extend to other healthcare professionals.

Please, keep the ER stories coming, because you never know who might be reading this blog or how many lives your stories may touch. I've cried from a few myself.

I'm hoping that these stories will reach those who are struggling right now, and give them some hope - to help them realize they're not alone.


http://www.emilysstomach.com/2018/06/invisible-emergencies-series-part-two.html



#gastroparesis #GPAwareness #GPLife #SpoonTheory #Chronicillness #invisibleillness #GPWarrior #EmilysStomach #GP #stayingpositive #fightingGP #spoonie #EDSAwareness


My blog: www.emilysstomach.com
Group: www.facebook.com/groups/strongerthangp Website: http://emily-scherer.squarespace.com/ Twitter: www.twitter.com/emilysstomach Instagram: www.instagram.com/emilysstomach/ Pinterest: http://www.pinterest.com/chikensrule/ Google+: http://plus.google.com/communities/108169550159668705578

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Please, send your Emergency Room stories my way, because you never know who might be reading my blog or how many lives your stories may touch.

My Email: emilysstomach@gmail.com

I would like to include as many stories as I can for this series because everyone deserves to have their voices heard! I want healthcare professionals to know that not everyone with chronic pain and/or a chronic/invisible illness is a drug seeker. Our pain is very real and sometimes, we need the extra help of the ER to get it down to a more manageable level.

I also want doctors to read this and realize we are more than just statistics, we ARE people too! If one healthcare provider reads this and we can reach ONE person, then we might cause ripples that will extend to other healthcare professionals.

Please, keep the ER stories coming, because you never know who might be reading this blog or how many lives your stories may touch. I've cried from a few myself.

I'm hoping that these stories will reach those who are struggling right now, and give them some hope - to help them realize they're not alone.


http://www.emilysstomach.com/2018/06/invisible-emergencies-series-part-two.html



#gastroparesis #GPAwareness #GPLife #SpoonTheory #Chronicillness #invisibleillness #GPWarrior #EmilysStomach #GP #stayingpositive #fightingGP #spoonie #EDSAwareness


My blog: www.emilysstomach.com
Group: www.facebook.com/groups/strongerthangp Website: http://emily-scherer.squarespace.com/ Twitter: www.twitter.com/emilysstomach Instagram: www.instagram.com/emilysstomach/ Pinterest: http://www.pinterest.com/chikensrule/ Google+: http://plus.google.com/communities/108169550159668705578
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