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Emily Scherer
owner

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I thought this article would be useful and helpful to people with chronic illnesses, especially since our holidays are centered around food:

http://www.emilysstomach.com/2014/11/handling-holidays-with-chronic-illness.html

#gastroparesis #gp #gpawareness #invisibleillness #holidaystress
I know this time of year is really rough for all of us. As someone with GP, I cannot eat like normal people do on thanksgiving. I plan to cook for my family and friends, but I was wondering how to deal with the fact that I ca...
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Melissa McElfresh
moderator

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Looking for a 2015 Calendar?   Why not pick up one at The GP Fight Store?   We have "GP Faces" as our theme this year.  Each month is a different face of gastroparesis.  The calendar has GP awareness days marked on it, links for more information, groups and resources.   These are the stand up small desk size calendars (perfect for home or office).  Spread Awareness with us -- as $1 per calendar will be donated for just that... GP Awareness!!   Order yours at www.GPfight.com
Gastroparesis GP Awareness Items For Sale
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Julie Ott

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https://www.indiegogo.com/projects/pas-de-lait-bakery/x/8444941

Gastroparesis friendly, dairy-free and peanut free bakery.
Dairy free, peanut free, Gastroparesis friendly, and healthy baked goods and sweets.
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Melissa McElfresh
moderator

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Here is the perfect shirt to raise awareness for gastroparesis as well as donating funds to gastroparesis research!   This fundraiser ends July 14, 2014.  

More info and to order or donate can be found here:  www.booster.com/SnailGPshirt

Follow our Facebook Event Page at:  https://www.facebook.com/events/261052967432875
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Dedee Paysse's profile photoMelissa McElfresh's profile photoShirl Ann's profile photo
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Thank you, Dedee.  We did 2 of these in 2014 and they did really well.  Keep your eye out as we will do another one in the Spring of 2015.  If you are on Facebook check out our "GP Fight - Gastroparesis" Page where we typically announce these.   If you like the snail design, we have it on non-green shirts, polos, hoodies and totes in our GP Fight Store (www.GPfight.com). 
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Emily Scherer
owner

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I hope that all of you are having a great tummy day! <3
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Emily Scherer
owner

Discussion  - 
 
Hello Everyone,

I have received 9 Gastroparesis Progressional Timelines. If you are interested in sending in yours, you can read my blog entry here:

http://emilysstomach.blogspot.com/2013/05/progressional-timeline-of-gastroparesis.html

It will give you directions for different formats, tell you what this research is for, what kind of information to include, and it will tell you where to send your Timeline to.

I am determined to find a common link or anything that connects us. I will be glad to publish a research paper based on these timelines when I'm done.

I need a variety of timelines to have a good enough sample to conduct research with.  I am missing Timelines for guys, diabetics, and kids who are strong in the fight of #gastroparesis .

The more timelines I have from different types of people, the more thorough the research will be.

Keep in mind that this research may be a stepping stone for better treatment, awareness, research, and new technologies to help treat us. But, I can't do that without all of your help!

Thanks to those of you who sent theirs in already. It is much appreciated! ♥

Emily

#gastroparesis #gpawareness #gpresearchstudy #research #researchpaper #gp  
Can you please send us a progression timeline of your Gastroparesis? Please make a timeline and include years for - right before you got sick, when you got sick, doctors visits and what they told you, any pain specialists, te...
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Lauren Ashley's profile photoEmily Scherer's profile photo
4 comments
 
I had mine out in 2010, and then was diagnosed in 2012 with GP.  I just find it interesting.
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Emily Scherer
owner

Discussion  - 
 
My Blog: www.emilysstomach.blogspot.com.   If you are looking for tips on what do next if you're newly diagnosed, it's in my blog.  I have also documented tests that I could almost not find on the Internet in detail.  Additionally, it contains resources that would be useful - like financial assistance and support networks.  United Healthcare even uses my blog as a resource for their #gastroparesis patients.

Laughing Thru GP on Twitter at: www.twitter.com/laughterthruGP

Green's Not Easy on Twitter:  www.twitter.com/gnewithgp

Email GNE at: gnewithgp@gmail.com



Our Pages on Facebook:

Gastroparesis: http://www.facebook.com/GreensNotEasy

Green's Not Easy Family: http://www.facebook.com/GreensNotEasyFamily

One Million Likes for Gastroparesis: http://www.facebook.com/onemillionforGP

Pediatric Gastroparesis: http://www.facebook.com/lilGPpeeps

Gastroparesis and Diabetes Support Group: http://www.facebook.com/groups/gpanddiabetes

Journey with Gastroparesis: http://www.facebook.com/pages/Stephanie-Torres-Journey-with-Gastroparesis

Pages of Positivity: http://www.facebook.com/PagesOfPositivity

Medical Identity Cards: http://www.facebook.com/MedicalIdentityCards




Other GP Sources worth checking out:

Gastroparesis Awareness through #pinterest : http://pinterest.com/chikensrule/gastroparesis-awareness-staying-positive-and-sprea/

Humor Through #pinterest : http://pinterest.com/chikensrule/lulz/

GP Friendly Recipes on #pinterest : http://pinterest.com/chikensrule/gastroparesis-friendly-recipes/

Other resources can be found on my blog:
http://emilysstomach.blogspot.com/2013/04/resources-for-help-to-explain-gpdtp.html

#gastroparesis #gpawareness #Facebookpages #resources #gp #blogging  
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Emily Scherer
owner

Pictures  - 
 
Humor to make you smile! =)
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Emily Scherer
owner

Discussion  - 
 
A new blog entry.  I am requesting people's progressional timelines since being diagnosed with #gastroparesis .   I wrote down all of the instructions and what I'm looking for in my new blog entry. 

I hope you will consider emailing in your timeline.  Maybe, between us all, I can get a doctor to fund a study while using our research as a stepping stone.  We just might open the door for other things.  I choose to remain optimistic!

http://emilysstomach.blogspot.com/2013/05/progressional-timeline-of-gastroparesis.html
Can you please send us a progression timeline of your Gastroparesis? Please make a timeline and include years for - right before you got sick, when you got sick, doctors visits and what they told you, any pain specialists, te...
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About this community

The goal is to spread the word about Gastroparesis so that we can get funding for research. Gastroparesis is a debilitating stomach disease that literally means paralysis of the stomach. One of every 62 people in the united states alone (about 5 Million Americans) have been diagnosed with Gastroparesis. No awareness, no funding, no research. Spread the word!

Emily Scherer
owner

Discussion  - 
 
Going on a cruise with GP: http://www.emilysstomach.com/…/11/going-on-cruise-with-gp.h… ‪#‎gastroparesis‬ ‪#‎gpawareness‬ ‪#‎travellingwithgp‬ ‪#‎chronicillness‬
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Emily Scherer
owner

Discussion  - 
 
How to Feel Sexy/Have Sex with Gastroparesis or a Chronic Illness : http://www.emilysstomach.com/…/how-to-feel-sexyhave-sex-wit… ‪#‎gastroparesis‬ ‪#‎sex‬ ‪#‎sexy‬ ‪#‎gplife‬ ‪#‎gp‬
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Emily Scherer
owner

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Two very brave women wanted to share their stories of being pregnant with #GP http://www.emilysstomach.com/2014/10/pregnancy-and-gastroparesis.html  #gastroparesis #gppregnancy
I am featuring a series of guest bloggers to blog about things that I don't have personal experience with, who can better answer your questions. A lot of questions that I've received recently have to do with GP and Pregnancy...
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Emily Scherer
owner

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There's new articles on my #blog .  Check it out at: www.emilysstomach.com

#gastroparesis #gpawareness #blogging #gp  
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Melissa McElfresh
moderator

Discussion  - 
 
Some of us will stay inside and hide from the people, parties and food. Others will venture out side of their comfort zone to try some food, knowing they may get sick. Why would they do that? Simply because they want to feel ‘normal’ and fit in.

What ever you decide to do today, I hope you have a good day and enjoy it to the best of your ability!
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Melissa McElfresh's profile photoDeanna Ramos's profile photo
 
Wishing you all a wonderful day, no matter what you decide to do.  Rather, what your body tells you to do.  Hugs to you all!!  <3 Melissa
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This is my very first post on here, just spent fourteen days in the hospital with a line infection with both bacteria and fungus in my blood stream. They put in a new Hickman once my cultures were clear for forty eight hours. I can't tolerate any tube feeds at all, my surgeon came to see me and said he thinks we've exhausted all of our efforts and still can't find a reason why my intestines have failed, but at this point it doesn't matter anymore. He is making calls to hospitals that do intestinal transplants and working on getting insurance to cover everything. He told me that I've already qualified one of the requirements since I've had so many line infections. I'm really scared because I have a two year old that needs his mommy back, I'm twenty seven and when I can muster up the energy to get out  of bed and go out somewhere with my husband and son I have to use my new wheelchair. I'm just scared and yet excited...this transplant would give me the life I had back with a few changes, tough changes, but to be able to chase my baby at the park is worth it.  Sorry just needed to get everything off my chest.
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Melissa McElfresh's profile photoEmily Scherer's profile photo
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I hope that you're able to find some relief soon! <3
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Emily Scherer
owner

Pictures  - 
 
The top picture is from Christmas, 2011.

The bottom picture is from two weeks ago.

The doctor doesn't believe that I've lost weight.  facepalm

#gastroparesis #weightloss #malnourished #starving #gpawareness  
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Michael Bentley's profile photo
 
I missed the first sentence and thought the bottom was two weeks ago and top was today or something. I was like girl, I'm with the doc on this one! Ha ha good job!
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Dedee Paysse
moderator

Artwork  - 
 
We are All Warriors and can continue to fight!!!! :-) 
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Melissa McElfresh's profile photoJulie Ott's profile photo
 
Great post!  Thanks for sharing!!
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