I have a question, need some opinions/input ... I have RSD/CRPS ... I have lived with it for roughly 11 years now.
Many know that RSD/CRPS is classified as a "rare" condition/disease, and that many many in the medical field [especially Nurses and PAs (Although a PA who was a retired Orthopedics Dr diagnosed me, further backed up by top Neurologists at the UW)] do not know about RSD or know very little about it. [I mean no disrespect to the Drs and those in the Medical Field, but in situations like this, sometimes, the patient is the best at explaining it]
So I have a good friend, who myself and 2 of my best friends realized doesn't know much about my RSD. I mentioned how I had realized that and asked him if he wanted to know/learn more. He said "sure I guess" [after hours of not responding] Well his mom is a nurse ... and had to look up the info, but instead of asking me, learning from me, he asked her and called a surface deep explanation good.
Ok so he didn't ask me, big deal right. Never mind I live with this beast day in and day out and his mom, while knowledgeable about a lot, had to look RSD up [to show her talent, something else that is a side affect/issue she did know about. But it was that same conversation, one night as they gave me a ride home, when she said she didn't know anything about RSD and needed to look it up]. That is, well, whatever lol
My issue here is this though, his info barely scratches the surface. How could I convey that to him? How can I teach him, assuming he was honest and does want to learn, if he thinks he already has all the info?
To be honest, I did feel somewhat slighted/insulted by him not learning from somebody who lives with this, but I got over that ... I am just afraid that he has just enough knowledge to think he knows it all ... and thus has a very inadequate and warped view of the reality here.
My other close friends, they learned from me and their own research. Sheesh two of them researched with me ... one asked his personal doctor info on it so he could learn, and that same one was there when the top neurologist diagnosed me ... and that Dr. was kind enough to answer every question that the both of us had! Those friends know, they understand ... they help in better ways because of that knowledge.
Anyhow ... thoughts on this? Input?
sorry ... may have sort of rambled and vented a little ... also been a bad pain week [weather swings]