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Megan King

Daily Living with Pain  - 
 
Wrote a new post. Hopefully many of you will be able to relate. Try to be happy with the "small" victories made in your day. http://myimpossiblemedicaljourney.blogspot.com/2015/05/2015-special-kind-of-strength.html
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Barby Ingle
moderator

Pain Management  - 
 
5/10/2015 edition of MOTIVATIONS from the Nerve Pain Community by the @PowerofPain Foundation is out! http://paper.li/f-1386213471 #PaintTheWorldOrange #ShareYourStory #ChronicPain
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Jason M
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As always, nice job!
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Power of Pain Foundation
owner

Pain Management  - 
 
It's time to get your awareness on by joining Power of Pain Foundation in participating in this outstanding educational and global awareness project! World Autoimmune Arthritis Day, an annual event that is happening RIGHT HERE on social media this year, has invited nonprofits from all over the world to take part as the Official Nonprofit Race Teams, competing to take home the title of ‪#‎WAAD15‬ Grand Champion and ‪#‎POPFoundation‬ has signed up to participate. www.worldautoimmunearthritisday.org - We can start earning 25 virtual mileage points for every time one of our supporters registers and selects Power of Pain Foundation as their Nonprofit Racing Team. So go register now for FREE and learn more about this awesome event and Power of Pain Foundation and the rest of the world as, together, we catapult awareness and education about our diseases to a new level! ‪#‎POP‬
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Barby Ingle
moderator

Pain Management  - 
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Barby Ingle
moderator

Pain Management  - 
 
Why is it important to keep your own copies of your medical records, Part 2 #correctingmistakes! by @barbyingle 
http://barbyingle.com/why-is-it-important-to-keep-your-own-copies-of-your-medical-records-part-2/
0. Categories: Health. Tags: Barby Ingle, Chronic Pain, Health, medical records, Power of Pain. My records have major mistakes. By Barby Ingle (excerpt from The Pain Code Book). Your medical record is comprised of all information generated during your treatment with all healthcare providers.
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Barby Ingle
moderator

Pain Management  - 
 
How to apply for a Chronic Pain Month Proclamation Class by @powerofpain- Monday, April 20, 2015 at 8pm Eastern (5pm Pacific), online - RSVP at https://www.eventbrite.com/e/how-to-apply-for-a-chronic-pain-month-proclamation-registration-16603928798  

Ever want to learn how to apply for a state proclamation for an awareness day/week/month? Power of Pain Foundation would like to make the process easier for you. Join Barby Ingle (POPF President) and Twinkle VanFleet (POPF Advocacy Director) for a class on the process. 
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such a bad pain week ... I hate weather changes [and time changes lol] To be honest, I am excited for summer ... but the spring storms are bad, only slightly better than winter.

depression, a spread of my crps/rsd , the "normal" ["typical"] crps/rsd pains/symptoms ... hard to concentrate and hard to sleep ... grr ... I just want to curl up in a ball, hide out and scream!

okay ... I'm done venting [and tried to keep it in general terms lol]
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Jason M
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You're most welcome Barby! And yeah, I was heart broken when the "friend" laughed at/about this damn beast! I still haven't decided what exactly to do about it ... I think I want to/hope to teach him why it's no laughing matter and perhaps save a friendship in the process ... who knows though!
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Barby Ingle
moderator

Daily Living with Pain  - 
 
Finalists for Best in Show: Google+@barbyingle, @raitzade, @projectheal, @alzheimersread&@drnealhoustonOn March 18th at 12:20PM EST find out who the Best in Show: Google+ winner is! ‪#‎HAAwards‬ www.wegohealth.com
We are WEGO Health — a network of over 100,000 of the most influential members of the online health community. We are bloggers, tweeters, pinners, and leaders of Facebook pages — we are the empowered patients that drive the healthcare conversation online, across virtually every health topic and condition.
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Jason M

Daily Living with Pain  - 
 
I have a question, need some opinions/input ... I have RSD/CRPS ... I have lived with it for roughly 11 years now.

Many know that RSD/CRPS is classified as a "rare" condition/disease, and that many many in the medical field [especially Nurses and PAs (Although a PA who was a retired Orthopedics Dr diagnosed me, further backed up by top Neurologists at the UW)] do not know about RSD or know very little about it. [I mean no disrespect to the Drs and those in the Medical Field, but in situations like this, sometimes, the patient is the best at explaining it]

So I have a good friend, who myself and 2 of my best friends realized doesn't know much about my RSD. I mentioned how I had realized that and asked him if he wanted to know/learn more. He said "sure I guess" [after hours of not responding] Well his mom is a nurse ... and had to look up the info, but instead of asking me, learning from me, he asked her and called a surface deep explanation good.

Ok so he didn't ask me, big deal right. Never mind I live with this beast day in and day out and his mom, while knowledgeable about a lot, had to look RSD up [to show her talent, something else that is a side affect/issue she did know about. But it was that same conversation, one night as they gave me a ride home, when she said she didn't know anything about RSD and needed to look it up]. That is, well, whatever lol

My issue here is this though, his info barely scratches the surface. How could I convey that to him? How can I teach him, assuming he was honest and does want to learn, if he thinks he already has all the info?

To be honest, I did feel somewhat slighted/insulted by him not learning from somebody who lives with this, but I got over that ... I am just afraid that he has just enough knowledge to think he knows it all ... and thus has a very inadequate and warped view of the reality here.

My other close friends, they learned from me and their own research. Sheesh two of them researched with me ... one asked his personal doctor info on it so he could learn, and that same one was there when the top neurologist diagnosed me ... and that Dr. was kind enough to answer every question that the both of us had! Those friends know, they understand ... they help in better ways because of that knowledge.

Anyhow ... thoughts on this? Input?
sorry ... may have sort of rambled and vented a little ... also been a bad pain week [weather swings]
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6 comments
Jason M
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Why thank you! :) 
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Barby Ingle
moderator

Pain Management  - 
 
Power of Pain Foundation is doing a PAIN Community Needs Assignment. Please take a few minutes and complete this survey. https://docs.google.com/forms/d/1m_etTGDnfF-3dhg75la1vqNywYLv85E0C8ooIA2dlkc/viewform Thanks so much ~ POPF Staff
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3 comments
Jason M
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You're welcome :)
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Barby Ingle
moderator

Daily Living with Pain  - 
 
Can someone help me find the burning, stabbing, sharp, crushing, throbbing, electric, aching, fever, so I can rest Medicine. Learn more about the @powerofpain‪#‎PILLphilosophy‬ at: www.powerofpain.org
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Jason M
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That is great!
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About this community

@powerofpain is a national 501-c-3 charity that transforms shame into understanding, statistics into people, and raises awareness into action. Make a donation or join the efforts www.powerofpain.org

Royal Rife

Pain Management  - 
 
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Royal Rife

Pain Management  - 
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Barby Ingle
moderator

Pain Management  - 
 
4/19/2015 edition of MOTIVATIONS from the Nerve Pain Community by @PowerofPain Foundation is out! http://t.co/zWPaof5v1d ‪#‎BurningForACure‬
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Barby Ingle
moderator

Pain Management  - 
 
Why is it important to keep your own copies of your medical records, Part 1 by @barbyingle 
http://barbyingle.com/why-is-it-important-to-keep-your-own-copies-of-your-medical-records-part-1/
0. Categories: Health. Tags: Barby Ingle, Chronic Pain, Health, Medform, medical records, Power of Pain Foundation, RSD. Requesting Healthcare Records By Barby Ingle (excerpt from The Pain Code Book). One thing I have learned over the years is how important it is to keep a copy of all of your ...
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Barby Ingle
moderator

Daily Living with Pain  - 
 
CALIFORNIA Pain Community:@powerofpain is cosponsoring AB623 on abuse deterrent formulations. If you are with us and believe that the pain community needs tools that will HELP keep life giving medications available to pain patients, please support us and send the following email showing your support. 

SEND TO:
assemblymember.bonta@assembly.ca.gov, liz.snow@asm.ca.gov; dharia.mcgrew@asm.ca.gov

SAMPLE TEXT:
RE: CA AB 623 (Wood) – SUPPORT
Dear Honorable Chairman Rob Bonta,
I am writing to request your support and that of the Assembly Health Committee for CA AB 623. I want to thank you for the significant work you are doing on the serious public health issue of prescription drug abuse and safe, effective opioid prescribing. The responsible patients should not be punished by the crackdown on prescription drugs and opioid abuse. I stand with the Power of Pain Foundation on this issue and strongly believe that passage of CA AB 623 is a vital component of a comprehensive approach to addressing prescription drug abuse. 

"A little about your story."

Again, thank you for your work on this critical public health issue and your service to the State of California. 

Sincerely, 
(your name)
(your contact info)


* PLEASE REMEMBER TO LET US KNOW IN THE COMMENTS ONCE YOU HAVE SENT YOUR LETTER. ~ Twinkle VanFleet, POPF Executive Board & Advocacy Director
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Barby Ingle
moderator

Daily Living with Pain  - 
 
The Inter-agency Pain Research Coordinating Committee (IPRCC) was charged by the Department of Health and Human Services (HHS) to develop “a comprehensive population level health strategy for pain prevention, treatment, management, education, reimbursement, and research that includes specific goals, actions, time frames, and resources” as recommended in the IOM Report on Relieving Pain in America.
 
The National Pain Strategy draft is now open for public comment through May 20th, 2015. HHS invites input from a broad range of individuals and organizations that have interests in advancing the fundamental understanding of pain and improving pain-related treatment strategies.
 
Please read the National Pain Strategy Draft:
http://iprcc.nih.gov/docs/DraftHHSNationalPainStrategy.pdf

Use this link to register in the Federal Register Notice for Public Comment: 
https://www.federalregister.gov/articles/2015/04/02/2015-07626/draft-national-pain-strategy
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Barby Ingle
moderator

Pain Management  - 
 
With the Power of Pain Foundation as a sponsor of the new bill CA AB623 on ADF addressing Opioid Abuse, this Op-Ed by our ‪#‎POPF‬ President Barby Ingle has special significance being published today ‪#‎RareDiseaseDay‬ http://www.desertsun.com/story/opinion/contributors/2015/02/28/ingle-pain-medication-tech/24144627/
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Power of Pain Foundation
owner

Daily Living with Pain  - 
 
Opioid Induced Constipation - Choose to GO with Pain Relief. For those out there taking opioids more than half also experience OIC. Now there is something that can specifically help with OIC. Check out this OIC Awareness video! #OICawareness #ShareYourStory http://youtu.be/_u8obxG3Dqo
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