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We are currently working on making more mobile-friendly so you might run into some glitches or errors on the website. If you run across one of these glitches, feel free to shoot us a comment or a message with the error that you got. That way we can get it fixed asap! Thanks for everyone's patience while we work towards this goal!

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While the International SCN8A Awareness day may have passed, it is still necessary to promote awareness and support for SCN8A research each and every day. This support and awareness is crucial to maintaining and growing our SCN8A Registry.

If you are able to make a donation, or if you still haven't picked up an SCN8A shirt/hoodie, there is still some time left! The fundraising campaign ends this Saturday, so be sure to head over to the Booster page to help support the registry!

All funds raised through Booster will go towards supporting the SCN8A Registry.

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We're just one day away from the International SCN8A Awareness day! Hope everyone has their 8A Awareness shirts, or purple shirts ready!

In the meantime, head over to The Cute Syndrome's page to see their "Did you know..." series featuring some of the kiddos with a SCN8A mutation. You'll read some surprising facts about each child's SCN8A journey, and you'll get to see some pretty cute photos!

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Wishes For Elliott has been doing a countdown until the 1st International SCN8A Awareness Day, and if you haven't checked it out already we highly recommend you go over to their Facebook Page and give it a look!

New features will be rolled out on the scn8a website on the International SCN8A Awareness Day!

This includes:
-The new User Dashboard
-Updated Registry Questionnaire
-New Forum Layout

and much much more!

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If you weren't able to buy your 8a Awareness t-shirt last week, don't fret! Shirts are still available at

We hope to see many pictures of everyone wearing their 8A awareness shirts, or wearing purple on February 9th!

All funds raised will go towards our Registry Project on

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The necessity of heart monitoring is a question we often hear when it comes to our 8a kids due to their increased risk of sudden unexpected death in epilepsy (SUDEP). A recently published article explores cardiac arrhythmia in their scn8a mouse model. The researchers found that the 8a mouse heart cells were hyperexcitable and even exhibited abnormal contraction. If you want to read more on this, follow the link to our website below where you can access the full article.

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The December Conference Survey is live and the limited available data on 23 scn8a kids suggests that certain "hot spots" of the location of mutations may reliably predict the severity of outcome.

But only with more data on more children will scientists be able to confirm and study such correlations and begin exploring precisely targeted interventions to treat those uniquely affected individuals.

Access the survey here: and help research be accurately focused on patterns of conditions and experiences of our children. If you've already completed your survey please share this message to encourage others to take part in this survey.
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