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I was fortunate enough to be featured in Daily Mail UK to raise awareness for EDS (Ehlers-Danlos Syndrome). There are a couple things that are inaccurate. The title says I could barely walk for 4 years; that's not entirely true. I could walk. There were difficulties when in a neurological flare. All in all though, they did a very good job.
http://www.dailymail.co.uk/health/article-5807937/Woman-dismissed-doctors-four-years-finally-diagnosed-rare-spinal-disease.html#comments #ehlersdanlos #ehlersdanlossyndrome #eds #edsawareness #ehlersdanlossyndromeawareness #scoliosis #scoliosisawareness

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https://www.chronicpainpartners.com/webinar/free-webinar-chiari-i-malformation-eds-and-craniocervical-instability/

Free Webinar – “Chiari I Malformation, EDS, and Craniocervical Instability” -
April 12, 2018
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