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Dan has started his bike ride across NE! He is #RidingforRare It will be over 400 miles (and I thought 20 miles was difficult)! #OhtaharaSyndrome
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Behind on posting updates here so I thought I would share Aaron's recent blog, helping us figure out what to do on a cold snow day. Lately though we have beautiful weather and he has also helped us decide what to do on these nice, rare warm days in Jan! https://sites.google.com/a/ohtahara.org/ohtahara2/aaron-s-blog/somedaysareforstayinghome

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Sharing some exciting news! Save the Date and Mark your Calendars!! November 15th will be the first annual World Ohtahara Syndrome Awareness Day. We are thrilled to recognize this day in honor of our children! Thank you to all who made it a possibility!
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Aaron's blog update...  More adventures from Aaron!  moreadventures | ohtahara2

Interesting article on half siblings diagnosed with Ohtahara Syndrome  http://www.ejpn-journal.com/article/S1090-3798%2814%2900060-9/abstract

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Nebraska Walk for Epilepsy 2014 photos.  This was our second year having a booth for Ohtahara Syndrome.  Check out the photos on our facebook page  https://www.facebook.com/media/set/?set=a.900779126603318.1073741834.118205041527401&type=1

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Check out our Ohtahara Syndrome Conference and Family Gathering photos! Fresh from Boston!! :)  we had a blast, such a good time with NINE families!!!  We love these families and children so much, it was such a blessing to be a part of such a great weekend!!! 

Very excited about the upcoming Ohtahara Syndrome Conference and Family Gathering!  This weekend! :) 
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