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Title: Brain Tumors and Tooth Pain
Brain Tumour presenting as Toothache and Trigeminal Neuralgia - Damage of Trigeminal Nerve (CN5)

For individuals with a Schwannoma tumor, brain nerve tumor, there could be more tumor masses than you know of, especially individuals diagnosed with Neurofibromatosis Type 2 (NF2). Because of this, tooth pain may not be a tooth issue but a Schwannoma issue.

Mention tumors as a possible reason for the pain to your dentist before having a root canal or removing teeth, neither of which will stop the pain if it is Schwannoma on the lower portion of Cranial Nerve 5 (CN V), the Mandibular Nerve branch of the Trigeminal Nerve. Removal of teeth because of CN5 damage has occurred more than once.

This was a case share by a Dental Team of this with pain but the result of Trigeminal Neuralgia pain from Trigeminal Nerve damage in a recent patent visit.

Learn More: https://www.nf2is.org/cn5.php
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Title: "New MRI contrast Iron Oxide Nanoparticles: Research at Animal Phase"

During an MRI/MRA test to enhance what the scans show an injection of a Gadolinium-based agent is necessary. There are known possible side effects of these agents that could range from mild discomfort during and for a few hours after the injection, but with repeated injections over time can result in kidney problems including possible Renal Failure (Kidney Failure).

In 2016, researchers confirmed a new contrast agent of Iron Oxide Nanoparticles could potentially replace the Gadolinium-based agents for MRI/MRA contrasts. Recently related information of trials with Iron Oxide Nanoparticles in animals including; rabbits, dogs, and macaque monkeys have so far proven it is as safer than Gadolinium.

It has also shown it can distinguish differences from; air, hemorrhage (Strokes), calcification, metal deposition, and blood clots, some of which required CT Scans with ionizing radiation, a scan type that alone could result in tumor growth.

Kidney problems are also a possible result of drug-tumor treatments, making this an important development for individuals with tumors.

https://www.nf2is.org/kidney_failure.php
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Recent News
NF2 Information and Services (NF2 IS)
https://www.nf2is.org/newslisting.php
Recent News
Recent News
nf2is.org
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NEI charts a Clearer Future for #Cataract Prevention and Treatment - Sectio: Eye Drops Work for Dogs
Date Shared: July 26, 2017 Source: National Institute of Health. National Eye Institute.

Cataracts is an issue for the general population after the age of sixty-five (65), but somewhere between sixty percent to eighty percent (60% - 80%) of individuals with NF2 develop Juvenal Cataracts at or shortly after birth.

"Dogs may have a topical treatment for cataracts soon. "We just completed a clinical trial and found an eighty-five percent (85%) reduction in cataract formation in diabetic dogs," said Peter F. Kador, Ph.D., an NEI-funded researcher at the University of Nebraska Medical Center. Diabetes is a risk factor for cataract in both dogs and humans. The drug he developed prevents cataract formation by stopping a metabolic reaction in lens epithelial and fiber cells. Kador believes the drug may work in humans."

NEI points to a treatment named Kinostat®, but there appears to there may be more than one eye drop and possible non-surgical option for Cataracts. Talk to your doctor.

https://www.nei.nih.gov/content/nei-charts-clearer-future-cataract-prevention-and-treatment
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Calls to Poison Centers about #Supplements up 50%, between 2002 - 2012
Source: Victoria Knight | CNN, Journal of Medical Toxicology, National Poison Data System

Dietary Supplements; #Vitamins, #Minerals, #Herbs, #Botanicals, #Homeopathic Agents and Amino Acids
Symptoms; Tachycardia (rapid heart rate), Vomiting, Nausea, Irritability, Drowsiness, and Dizziness.

"From 2000 to 2012, there were 274,998 dietary supplement exposures reported to poison control centers across the US: one call every 24 minutes, on average. " This is an increased rate of 50% from previous years.

While source focus is a concern for children, under the age of six (6), which accidentally consumed dietary supplements of parents, adverse side effects were also a reported issue with older children and adults.

Dr. Henry Spiller comments on his report, "Because Supplements are not medicines prescribed by the doctor, people think of them as natural, but they need to be treated as if they were medicine. Because the FDA does not regulate dietary supplements, there are no robust studies done to ensure that they are efficacious or have a reliable safety profile. We're often going down a path of unknowns, and for possibly no benefit at all. We don't know if there's a benefit to taking any of these supplements, because of the lack of studies. People need to be aware of that."

"Just because it's a natural supplement doesn't mean it's safe," he said. "I often use the example, technically, that cocaine is also natural. But that doesn't mean it's safe."

http://www.cnn.com/2017/07/24/health/dietary-supplements-poison-control-study/index.html
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NF2 Ohio Gathering (OG) 2016 - Transcripts
Date Shared: July 20, 2017 | Event Date: October 8, 2016 | Source: Phyllis Lee, NF2 Event

The October 2016 NF2 Ohio Gathering Transcripts include important topics is available in full at https://www.nf2is.org/og2016-3sections.php. There are jump points to the three (3) sections for help finding sections given the length of the document.

- Section 1: Dr. Herbert B. Newton, Bevacizumab (Avastin™) - Glioblastoma and Schwannoma
https://www.nf2is.org/og2016-3sections.php#S1Newton
- Section 2: Dr. Oliver Dunka, ABIs (Med-El™)
https://www.nf2is.org/og2016-3sections.php#S2Dunka
- Section 3: Dr. Michael Harris, Schwannoma Surgery
https://www.nf2is.org/og2016-3sections.php#S3Harris
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Awareness Day 31 - Fatigue from Tumor Nerve Damage
Vitamin B12 Deficiency and Poor Immune System

Neurofibromatosis (NF); NF1, NF2, and Schwannomatosis (SWN/NF3) can leave individuals with severe fatigue from tumor cell growth on nerves which can result in; B12 Deficiency and a Poor Immune System.

- Vitamin B12 Deficiency: Individuals with NF may be at risk of B12 deficiency since this vitamin helps with the development of cells for nerve health. With tumor cell growth on nerves individuals with NF may need more B12 than the average person. However; the body can have an issue with B12 absorption in food alone and a supplement may be the best course to prevent deficiency. Talk to your doctor about Vitamin B12 or B-Complex.
- Poor Immune System: Tumor cell growth and recovery from treatments; tumor drug-based treatments, surgeries, and radiosurgery can result in periods of the poor immune system for possibly only a few months or years with Iron Deficient Anemia. Specific foods may help but talk to your doctor about taking an Iron supplement.

When or if these things may be, an issue would show up on a regular blood test. Actual dose or if supplements are necessary should be determined based on a review of recent blood tests, in addition to a review of numbers for possible kidney issues.

It is in the best interest of individuals with NF for General Physician or Primary Care Physician (GP/PCP) to have some information about what NF can do and issues that may appear in bloodwork.
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Awareness Day 30 - NF2-associated Polyneuropathy

Approximately sixty-six percent (66%) of individuals with the condition of Neurofibromatosis Type 2 eventually develop Peripheral Neuropathy many of whom suffer from Polyneuropathy.

Polyneuropathy is damage or disease affecting peripheral nerves (peripheral neuropathy) in roughly the same areas on both sides of the body, featuring weakness, numbness, and burning pain.

As a result of the issue with Peripheral Neuropathy, some individuals are and have been diagnosed, with the condition of Multiple Sclerosis (MS) instead of NF2.
The only treatment for it is painkillers.

No treatment for prevention of NF2-Associated Polyneuropathy.
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Awareness Day 29 - Isolation - Deafness and Skin Tumors

Individuals with Neurofibromatosis (NF) may face isolation as a result of; Hearing Loss, or Skin Surface Tumors.
Hearing Loss - Hard of Hearing and Deafness

When an individual develops hearing loss, they are expected to use a hearing aid or hearing implant to correct hearing loss. Neither can help with replacement of all sound, especially in environments where many people talk at the same time.

Many who are deaf from NF2 are isolated at even family events if the family has not learned any form of sign language.

In the deaf community, it is often frowned upon to communicate with an individual trying to use hearing aids or implants.

With this in mind, many NF2 patients become stuck in the middle of the Hearing and Deaf cultures.
Reasons to Learn Sign Language:

Babies: Sign Language: Sign language can be used to communicate with babies before they can talk.
Age-Related Deafness: It is difficult to learn a new language later in life, but learning sign language can prevent isolation issues in elderly. Isolation from an inability to communicate with others can make issues of Alzheimer's/Dementia potentially progress faster.

Skin Surface Tumors

Individuals with NF1, NF2, and Schwannomatosis (NF3/SWN) can develop skin surface tumors. The quantity of these masses in individuals with NF1 often results in Isolation due to responses from others seeing these tumors.

NF1 is frequently confused with "Elephant Man's Disease."
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Awareness Day 28 - Doctor visit Issue

Neurofibromatosis (NF) can be overwhelming as NF1, NF2, and Schwannomatosis (SWN) can result in many varying problems.

Preplanning doctors' visits is ideal since:
- There are often too many issues to remember when seeing a doctor.
- An individual may take medications that are hard to remember the spelling.
- There are always many questions to ask as well as issues that need update status with your doctor.

The most overwhelming part can be the wait to review recent MRIs. The viewing of these with a doctor can often make it difficult to remember everything in discussions.

Preplanning visits with questions and issues you are experiencing in paper or a list on your smartphone is ideal. Saving copies of MRI's is also a good idea, to share with GP/PCP, Physical Therapists, or other doctors if needed later. Most MRI facilities with give copies to patients of their MRI's on CD for free or $20. It is of the utmost importance to remember; you are your best advocate.
Important Part:

DO NOT FORGET YOUR QUESTIONS LIST!

The sample included is also helpful for Hard of Hearing or Deaf individuals with the Questions and Answers of health at doctor's visits.
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