Profile

Cover photo
Gert Sønderby
833 followers|164,240 views
AboutPostsPhotosVideos

Stream

 
 
And every time we post something asking people to stop supporting Autism $peaks, people argue with us about it. Some of them attack us, some try to engage us in debate, and even the most well-meaning ask the same question we've all heard so many times before: "What's wrong with Autism $peaks?"
Editor's note: You can find more of Nick Walker's writing on his Neurocosmopolitanism blog. It's well worth the trip over there. Nick has been immensely influential on my growth as both a writer and an activist over the last ...
3
Gert Sønderby's profile photoLord Sri Sri ReverendKhan Jane Rakali's profile photoJuliane Clausen's profile photo
3 comments
 
+Gert Sønderby  Beautifully said. Thanks.
Add a comment...
 
Universal Basic Income is the logical step towards greater prosperity, greater productivity where it counts, and greater happiness.

h/t +Cade Johnson
 
Clear video argument for basic income 
11
3
Tjaart Blignaut's profile photoAndrew Pam's profile photoMichael Tufekci's profile photoJeff Lefrend's profile photo
2 comments
 
Brilliant. Thanks for that +Gert Sønderby .
Add a comment...

Gert Sønderby

Shared publicly  - 
13
2
Praveen Kulkarni's profile photoGert Sønderby's profile photoGem Hodges's profile photoJens Riggelsen's profile photo
4 comments
 
Might be those have been on the fritz lately. I wouldn't know, I don't use them myself. Wouldn't be the first bug in the notification system. :-)
Add a comment...

Gert Sønderby

Shared publicly  - 
 
Cute Metal needs to be a music genre. I'd say this here is a good example! 
16
bunsofsteel15's profile photoBoogie GIRFTW's profile photoGert Sønderby's profile photoLittleVMills's profile photo
7 comments
 
Well, I'd say the genre ought to be Cute Metal, but then, I'd really leave that up to the musicians playing it. Whatevs, I just want more of it. :-)
Add a comment...
 
The difference between today and before is, today we have a voice. Today we can find each other, and speak in unison.
5
1
Thomas Løcke's profile photo
Add a comment...
In his circles
537 people
Have him in circles
833 people
Leif Ohlin's profile photo
Doudia du Sahel's profile photo
Joe Dennis's profile photo
 
It is telling, I think, that to many autistics, April is "Oh gods, not that again" month. Is "If I see another puzzle piece tattoo, I'll barf" month. Is commonly viewed as a month to get over, to get through.

When it's supposed to be a month of awareness and acceptance of autism.
4
1
Sultan Saini's profile photoGert Sønderby's profile photoGem Hodges's profile photo
4 comments
 
Same for me too! It's such an odd assumption.
Add a comment...

Gert Sønderby

Shared publicly  - 
 
Yeah, gotta agree here. As the husband of someone who is often silenced on her own experiences (my wife is autistic) I am not so very happy about the referenced post.
 
So picture this if you will... A video clip of a deaf person getting a cochlear implant (CI) and hearing sound for the first time.  Someone shares this, along with a strongly worded statement that 

a) recognizes that the CI is controversial within the deaf community
b) absolutely forbids any mention of it in the comments
c) because it's all about the wonderful feelz

So, wow.

You know, in one corner of my mind, I can tell myself, well the person probably wanted to avoid having a ban hammer fest because of protracted arguments breaking out, particularly if they are not around to moderate the comments a bit more closely.  I can even tell myself it's kinda cool to see someone reacting to a bit of new technology.  I understand that harm is not meant.  There is no intentional malice.  

But that's in my head.  In my heart, I'm feeling a punch to the gut.

Be silent
Your voice doesn't count
Shut up
No one wants to hear you

I offer the commentary I do about living in a hearing world not so much to complain (although of course in some sense I'm complaining, and many, too many people out there will think "complaints" and nothing further).

But really, I'm always trying to raise awareness of what it is like when the default is to hear.  And one of the things that means is seeing a video clip like that treated essentially like a trip to the zoo.  Wow!  Look at all those cool things!  Ooh, that one never ate a banana before!  All with noses pressed to the virtual screen.

And you over there who might object, shut up.  Not a word.  And hey, that video?  It isn't captioned.  Only autocaption is available and it sucks for that video.  It isn't for you anyway.

Wow.

A punch in the gut.

Never mind that CI aren't perfect.  Never mind that for some people they will not work.  Never mind that even in the cases judged successes or at least more successful, the person is still deaf, is still in a hearing world and still needs access.  I don't actually have problems with CI -- anyone choosing to get one has my best wishes & good lucks sent their way. But CI is not a fix. It is not a cure.  We are not damaged.  We are not broken. We are not lesser.  But.  


But here's the message when you coo over someone hearing sound for the first time.  When you label it amazing and wonderful.  Because the person who chose not to have one isn't  Because the person who can't make use of them isn't.  Because the person who is deaf is less.  They don't merit attention or interest.  

And that attitude translates directly into an entire world of access problems.  Not a day goes by that I don't have to work around something, that I don't run smack into something kept from me because people don't think, don't care that access half the time is half assed and half implemented, or that any access granted at all is more than enough, solves all my problems and shut up already.  Most of this isn't even intentionally malicious.  But when I am denied access through unintentional apathy, it is still as much a problem as malicious denial.

I have disabled comments on this post because I'm not interested in a debate on this.  I'm posting on my own stream because I chose to respect the request on the original post I described above.  I'm not looking for resolution -- this has happened before (different video, different people), and it will happen again with another set of people, I'm sure.  

What I'm looking for is a moment of understanding the different perception of this event. And even that in my head I understand your perception.

But...

I still feel like I've been

punched

in

the

gut...
7
Gert Sønderby's profile photoLord Sri Sri ReverendKhan Jane Rakali's profile photo
2 comments
 
Agreed. And, knowing the poster who is referenced here, there was probably no other intent other than keeping the ensuing commentary from derailing into bullshit. But it ended up being a bit... awful.
Add a comment...

Gert Sønderby

Shared publicly  - 
 
Why haven't I heard of this game before? Oh right. Female protagonist, excellent art style, engrossing story. Look at this, and tell me it's not one of the best things you've seen in a long time!

This can use a signal boost - it's too cool to languish in obscurity!
70
3
Gert Sønderby's profile photoJes Wulfsberg Nielsen's profile photoMrMalkraz's profile photoBrianna Sheldon's profile photo
16 comments
 
And that's quite enough of that nonsense.
 
 
Thought of the Day:

For building a more sustainable way of life, it is not necessary to decrease economic growth - just to decouple economic growth from resource consumption.
1
Add a comment...

Gert Sønderby

Shared publicly  - 
 
 
This sculpture by Issac Cordal in Berlin is called "Politicians discussing global warming." via +Simon Divecha
8
Add a comment...
People
In his circles
537 people
Have him in circles
833 people
Leif Ohlin's profile photo
Doudia du Sahel's profile photo
Joe Dennis's profile photo
Links
Basic Information
Gender
Male