Profile cover photo
Profile photo
Simba9960
8 followers
8 followers
About
Posts

Post has attachment
A Summer of Firsts 2016
We’ve had a Summer of firsts! It’s been a little crazy
around here and Bee’s skin is starting to show some signs of “wear & tear”! First Solo Concert Back in July Bee was dying to go to a concert with a friend. By Her Self! I was like no way no how
will I l...
A Summer of Firsts 2016
A Summer of Firsts 2016
biancasnewadventures.com
Add a comment...

Post has attachment
A Summer of Firsts 2016
We’ve had a Summer of firsts! It’s been a little crazy
around here and Bee’s skin is starting to show some signs of “wear & tear”! First Solo Concert Back in July Bee was dying to go to a concert with a friend. By Her Self! I was like no way no how
will I l...
A Summer of Firsts 2016
A Summer of Firsts 2016
biancasnewadventures.com
Add a comment...

Post has attachment
Rare Disease Day - What Does A Rare Disease Look Like?
Behind my daughter's gorgeous smile we have a monster lurking. Periodically it rears it's ugly head & tries to defeat us. However, it cannot break us down or apart! What does a rare disease look like? Like a happy go lucky tween who loves to sing, draw & ac...
Add a comment...

Post has attachment
EB Awareness Week ~ Day 3 ~ Some Wounds Don’t Always Heal With Time...(GRAPHIC PICTURES)
...it takes thinking outside of your comfort zone!  Some wounds don’t always
heal with time & some wounds don’t ever heal at all! Bianca’s type of EB is
called Recessive Dystrophic Epidermolysis Bullosa. She produces very little of the
“glue” that holds the...
Add a comment...

Post has attachment
EB Awareness Week 2014 ~ Day 1 ~ Good Morning Sunshine...
It’s the start of EB Awareness Week! And it’s time to Cause The Wave! For
the start of the week on EB Awareness let me fill you in to some of the
comments, statements or conversations you will only hear in a household that
deals with EB – specifically RDEB ...
Add a comment...

Post has attachment
Dilatation #2 ~ 7 Years Later! Hip! Hip! Hooray!
Synergy and serendipity often play a big part in medical and scientific advances. Julie Bishop We have had an eventful Friday that's for sure! For those that were not aware Bianca has been having some serious difficulties eating solids. Food was getting lod...
Dilatation #2 ~ 7 Years Later! Hip! Hip! Hooray!
Dilatation #2 ~ 7 Years Later! Hip! Hip! Hooray!
biancasnewadventures.blogspot.com
Add a comment...

Post has attachment
Knowing When It’s Time for an Esophagus Dilatation
An esophagus dilatation is one of the most common medical
procedures an RDEB patient has done. Some can usually go several months between
dilatations while others can go several years. Bianca’s first dilation was done
back in May 2007. Symptoms were almost ...
Add a comment...

Post has attachment
Attitude with a side of Gratitude – Hello Holiday Season!
As the years have gone by the
holidays have become a treasured time for all Bee & her Christmas Tree!  of us. It starts out hectic and
stressful but as the days progress we get a bit more comfortable with the
notion that we are allowed to ease up and just r...
Add a comment...

Post has attachment
It’s A Bloody Battle Every Single Day... (SLIGHTLY GRAPHIC)
Around these parts we go to war every single night. There
are always casualties but many victories. Sometimes we have a night where we just pop one blister,
slather on the ointments, wrap it up and keep going. Then there are nights like
tonight. Bianca’s mo...
Add a comment...
Wait while more posts are being loaded