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akaSleen
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Cruel November
My dear friend Tom Marsilje died this week. I spent the wee hours of the morning today re-reading some of the many texts, emails, and facebook messages we shared since 2015 when we "met" online. In January of 2015, Tom went public with his Terminally Optimi...
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Follow Up 12
Once again, I traveled to NIH in Bethesda for blood work and scans. All is well--I am still NED. What's more, the attending physician (at long last) has extended my next visit to six months out instead of three. Hurray! Life is GOOD and health is a tremendo...
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Eleventh Follow-Up
Follow-up eleven (what?!) happened earlier this week. No cancer was found on any scan. On the seventh of this month I passed the one year NED mark. This amazes me! BEST PART of the visit was eating ice cream with friends. WORST PART was saying good-bye to m...
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NIH on NBC
Tune to NBC on Monday morning, February 6 during the 8:00AM hour of the Today Show to see Joan Lunden broadcasting from the National Institutes of Health. She interviewed me and The Guy ( together , because I am a big chicken) on my 10th follow-up post TIL ...
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Grateful
Welcome to the 100th post. Today is the Feast Day of Our Lady of Guadalupe ! I have a special devotion to Mary under that title. The words she spoke to Juan Diego in 1531 gave me courage in 2014, when I learned that chemo had failed me. "Do not fear this si...
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Follow-up #9
My scans were good! The radiology report included the word, "unremarkable" a total of five times. That is a record number of times for me. When a radiologist deems an organ "unremarkable", it means that no evidence of injury or disease is seen on the scan. ...
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Follow-Up #8
We are home from another follow-up at NIH. It was all good news! The clinic meeting, for the first time, was boring. My scans showed nothing new, and nothing growing. I won't be scanned again for four months . Woo! I can live (literally, ha!) with boring fo...
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Shifty Tumor
Breaking News! The Lab Guru shared some stunning information about the non-responding, shifty tumor that was surgically removed three months ago. After analyzing it, he now has a theory about why that tumor progressed in spite of TIL therapy! He cautioned t...
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Milestone
Last Friday was the anniversary of "Cell Day". I sent my husband out for a Pepperidge Farm Chocolate Cake just like the one they gave me on the day of the transfusion. On Sunday we packed up some of the kids and headed for Frankenmuth , where I was register...
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