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Hugs for Hailey
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Hugs for Hailey
Hugs for Hailey

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So much testing
Today’s appointments consisted of cardiology, physical therapy, and AFOs. For cardiology we go in every 3 months. Since Hailey has had her pacemaker she has gone into complete heart block. That means her pacemaker is pacing 100% of the time. Usually a pacem...
So much testing
So much testing
hugsforhailey.com
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Another year, another pair of AFOs
Hailey had trouble walking after her very first  # ataxic  episode when she was three. The damage to her brain from  # Leukodystrophy  has caused a permanent result in Hailey requiring assistance to walk independently. She has been wearing AFOs (ankle, foot...
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Pixie Dust and Magic
The other day, before school, Hailey noticed a glowing light dancing around the room. (Her dad’s watch was reflecting against the sun and making a rainbow light on the walls) Hailey’s explanation of the Mystery light was simple, “It’s Tinkerbell coming to v...
Pixie Dust and Magic
Pixie Dust and Magic
hugsforhailey.com
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Nascar 2018
We had an exciting weekend for Hailey! You know how much this kid loves watching the races! She’s a fan of RallyCar, NHRA, and Nascar. We were given tickets to Nascar weekend here in Las Vegas and it was great family time together!  🏎 💨  Thanks goes out t...
Nascar 2018
Nascar 2018
hugsforhailey.com
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How many times
I can’t tell you how many times I’ve walked into this hospital. I can’t tell you the number of nights I’ve spent trying to sleep in an uncomfortable hospital chair either in Hailey’s hospital room or the waiting room. How many hours I’ve spent waiting on up...
How many times
How many times
hugsforhailey.com
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New item in the Etsy shop PHONE GRIPS
These new character phone grips are just beyond adorable and they are now listed in our shop and ready to ship out!  www.etsy.com/shop/hugsforhailey
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Hunter's Hope 2018
*A SPECIAL MESSAGE FROM HAILEY!!* This video and this message from Hailey explain why we want to raise money for Hunter's Hope!  *TO SEE FULL VIDEO GO TO OUR FACEBOOK PAGE!* Support our team for the Family Symposium! Each year,  Hunter's Hope Foundation...
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Safety Belt Custom Pads
We had decided to list some custom safety belt pads in our Etsy store. These are only $15 each and you have 3-4 lines of customizable wording you can add! Please check it out and share!  www.etsy.com/shop/hugsforhailey
Safety Belt Custom Pads
Safety Belt Custom Pads
hugsforhailey.com
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One of a kind art work
It's been pretty hot here and we've had to find activities that keep us cool and also keep us entertained. We came up with some fun one of a kind paintings that we are listing in our Etsy store. Take a look and see if you find anything you like or feel free...
One of a kind art work
One of a kind art work
hugsforhailey.com
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Check out our Shoelace Charms
We have the cutest shoelace charms listed in our Etsy store !! They are listed with introductory pricing and are ready to ship! These are all limited quantity with only 1 or 2 of each available! They string through your laces. These are not clip ons. Get yo...
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