Pray for Dorian
"The MRI of Dorian's spine came back with devestating results. The rhabdo has passed into his spinal cord and small cancer cells are floating in his spinal fluid throughout his spine and brain. This type of spread changes everything. He is no longer elegible for any trial. Chemotherapy, which we knew wasn't a cure anyway, will no longer give him extended time. Chris and I spent hours with our son, holding him, loving him, and deciding next steps. We sat with Dorian today and had the talk no parent should ever have with their child. But we did it. We told him what was happening. We told him he had a choice; continue chemo and possibly gain days or a week at most, or, stay home and be comfortable. Hang out with his family, do some fun things and enjoy the time left. Without the daily visit to the hospital. No chemo. No vomiting. No transfusions. No needles. Dorian easily made his choice; and his father and I support him.
Let me be clear, Dorian is NOT dying today. He isn't dying tomorrow. We have some time, but it is severely limited. This is why I ask that you not all reach out at the same time. We want to spend this time with our son, not on our phones. Send your love to our FB pages. Maybe post a video to D, I'll make sure he sees every single one of them.
This journey has been hard and long. He has fought the most amazing fight and he never gave up. He is, and forever will be, my hero. Always, always, always