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Erica Jewell
16 followers -
Everyday LIFE while living with Huntingtons's Disease
Everyday LIFE while living with Huntingtons's Disease

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Erica's posts

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A New Y-E-A-R
My last post was about getting a job, I got an email the other day saying my first day in Jan. 26. I am excited but of course nervous... I hope everyone had a wonderful Christmas, I did! My Sister & Nephew came in the weekend before Christmas to spend a cou...

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Breathe, Trust & Let Go
  I had filled out an application online about 3 weeks ago and I got the call last week to come in for a interview yesterday. I was told to study over a email I had received, it was basically going over what would be going on in the interview. After reading...

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Focus On The Good
I know I have neglected this for a while. My Husband recently got laid off, completely unexpected and blindsided us all, He has worked underground in the coal mines for the past 10 years, as an electrician and a foreman. I know it's a tough industry with al...

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The List Dosen't Define ME
I haven't updated sense my Doctors appointment. It all went well at the Huntington's Disease Center of Excellence at OSU. Every Wednesday they have a HD clinic and each patient has a 4-hr appointment, meeting with a Social Worker, Physical Therapist, Medica...

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I made this video of my Dad in 2008.

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After searching through all the Google Communities I was upset to find the lack of communities for Huntington's Disease, so I made one. I want this to be an outlet for others dealing with HD, just so everyone knows they are not alone. Please SHARE so we can help others, we are in this together.

I would like to introduce myself. My name is Erica, I am 26 years old and from Eastern Kentucky. I am married and we have two handsome little boys.
I started a blog as an outlet for myself, a way to deal with grief and just everyday life in general. Since I was a child I have known about Huntington’s Disease because my paternal Grandmother was put into the nursing home with it when I was 2. She had five children, one of them being my Dad. Each child of a person with HD has a 50/50 chance of inheriting the fatal gene. All of her children including my Dad tested positive for HD. In 2006 Dad was put into the Nursing Home because he required professional 24-hr care.
I did choose to be tested in 2009, because I felt like I worried about the “WHAT IF’S” all the time. I did test positive my CAG repeat is 45. I made the choice not to tell my Dad. By this time he was in late stages of the disease and I didn't want to see any more pain on his face, or give him more to worry about. I was pre-symptomatic at the time I got tested.
March 15, 2010 my world was turned upside down when my Mother was murdered. I had to be strong through it all because I was four months pregnant at the time. Then only seven months later on October 17th, Dad took his last breath after losing his battle with Huntington’s. I know each individual deals with grief in there own way. I feel as if it didn't really sink in until the last couple years. Now I find it is hard to distinguish the difference between normal depression and grief with losing both of my parents in such a short time, or is it the Huntington’s Disease.
Tomorrow is my first apportionment with a new Neurologist, I hope to get some answers and insight on why I feel the way that I do.
Please bare with me on my journey with support and prayers. If you have any questions or would just like to talk, add me to Facebook, Twitter, or Email: ejewell07@hotmail.com

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Check out my blog, everyday life while living with Huntington's Disease. Please share so everyone will know their not alone, we are all in this together. http://peaceloveandhd.blogspot.com

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Check out my blog, everyday life while living with Huntington's Disease. Please share so everyone will know their not alone, we are all in this together. http://peaceloveandhd.blogspot.com

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Check out my blog, everyday life while living with Huntington's Disease. Please share so everyone will know their not alone, we are all in this together. http://peaceloveandhd.blogspot.com
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