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Annette Maughan
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83 followers
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Weak links - a tale of failure and caution.
Thousands of little things happen everyday: Children laugh at gross things, lovers find each other for the first time, parents hold their little ones and pray for better days. Yesterday left us optimistic, angry and sad. I spent the rest of the day, after t...
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First, do no harm...should it be FIRST?
I blogged a few years ago about the Doctor creed: f irst, do no harm . I wrote it about the cannabis use that we were lobbying to get. It was a bit harsh, but it was also very true. Today, after the weekend we had and, after some curious goings-on the last ...
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The guesswork continues...forever.
It's surreal and painful for me to think back on the last few months. So,  I won't. Bug had a seizure the other day, didn't seem to be a bad one but it was of the new type that has me scratching my head. Bug's seizures, while awake, do not make him lose awa...
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THAT Day
Every so often, in the life of someone living with epilepsy, or even chronic lives, there is a day when A single event triggers (yes I said trigger and this is a really legit trigger, not just a 'I don't like that' trigger) an emotional break of sorts. A se...
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Touch
I've discussed this before but never really delved into the emotional rejection that a parent experiences when their child can not tolerate their touch: It sucks. I dreamt of holding my children close to me and feeling every little movement and breath as th...
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This Weed Appointment
Bug is enrolled in an IND (Investigational New Drug)for a cannabis product (it's not synthetic so don't start with me about that, just don't, I read what I sign) and he transferred (with great effort) from Primary Children's in Utah to NYU in New York. Ever...
This Weed Appointment
This Weed Appointment
isthisbug.blogspot.com
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The Mainstream
Bug's 15 birthday was a tad tough. As grateful as I was that we weren't in hospital and that he is simply still with us, I couldn't help but remember holding him for the first time. It's what Mom's do on birthdays. When I looked at him for the first time al...
The Mainstream
The Mainstream
isthisbug.blogspot.com
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Secret combinations, bribery or blackmail?
Finding a happy medium...not such an easy thing. For years, Bug has been overlooked in a lot of ways. I was told it was because I annoyed people, to which my response was: that doesn't make me wrong. But I keep coming back to me being the reason he is not...
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Tethered
These last few months have been emotionally draining, if you couldn't tell by the last post. Bug's surgery for tethered cord was an amazing success! I was a wreck and at one point, he developed a fever. I had a small freak-out, but I am allowed to do that n...
Tethered
Tethered
isthisbug.blogspot.com
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It's been a while
I'm trying to decide if this will be my last post on this blog. I used it to keep track of Bug's Medical changes so it was all fresh whenever we talked to his Doctor(s). Then it turned into lobbying for Bug and then back to Medical and then...I began to fee...
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