Such a Battle
Fibromyalgia is challenging to deal with on its own. But when family, friends and especially coworkers and bosses get involved, OOF! They just DON’T get it! When the pain, the fatigue or even just the side effects from the medications are so bad that you can barely call in to work to say you have to take another FMLA day off, even that adds to the problem. While protected by a long standing FMLA designation (Thank you President Clinton.), I still find people stepping right up to the line and even a few toes over the point of violation. “You do seem to be having more events lately. (Not really.) Are you sure your FMLA status matches you usage?”
Let’s be clear. There is no way to predict the frequency, severity or duration of a FM flare-up. If I can’t get out of bed because of the pain and/or pure exhaustion because I couldn’t sleep the night before because of the pain, I can’t just “snap out of it.”
The doubt that it even exists is almost palpable even though my department manager’s wife is on full disability from FM. Because I can’t show them a high temperature or other objective proof, I very often get “The Look.” That “Sure. That’s a handy excuse to sleep in.” look.