First off I would like to say that I believe we may have a fairly good understanding of your struggle. Each persons experience is different, but sometimes there are similarities and a kind of comradeship in finding others with such challenges... so please know you have our thoughts and prayers.
We (my wife and I) have been dealing with unusual health issues for close to 30 years. Some of this may have to do with Lyme and related problems. We are beginning to wonder if the imbalance that Lyme induced, also set our bodies into an electromagnetic spiral. To some that may sound like a stretch, but we know from definitive tests that our bodies take on extreme levels of metals. Sparing the details, where there should be calcium, magnesium, and the like there is copper, and high levels of heavy metals which are normally passed. So we may be "wired" differently on a cellular level. I wonder how many may be in a similar fix and not see the connection.
My wife has been hardest hit, but recently she has seen progress with a system called Nutritional Balancing by a Dr Wilson -US. How much that will improve her sensitivities is yet to be seen long term. Now we've spent a fortune on profiteers that have accomplished little, but this person does not seem to be in that category at all and is perhaps a glimmer of hope. (please don't take insult by this sharing, I am sure there have been countless insensitive suggestions, but this is not meant that way at all. I find that we must live in the shadow of hope and I just try to share any hope that may be possibly considered.)
I recently reviewed a video about EHS, and a British fellow showed how he had rooms in his house shielded, including the windows. Have you tried anything like this? Have you found ways to live or work around the challenges? I have considered building a small house of an A-frame design with metal roofing, yet I can find very little on details of what has actually been helpful. People who have been interviewed about these challenges seem to fall off the grid from my perspective. It seems to me that it would be good to share even the smallest successes and help those with EHS be informed by folks who live it rather than some who may be less than sincere.
Wishing you the Best,