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PIP-UK Charity
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PIP-UK's posts

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My baby brother was born on the 25th September 2015, the day I finally became a big sister. I remember finding out about his condition [Poland syndrome] and feeling sad yet proud to be his big sister. Not knowing what the future held and the…

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2016 Deep RiverRock Belfast City Marathon Belfast will host the 2016 event on Bank Holiday Monday 2nd May. Over 17,500 runners are expected to hit the streets of North, South, East and West of the City. We have been contacted by Debi who lives in Belfast.…

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Mum Tasha, tells about her experience on getting a diagnosis for Poland Sydnrome for her son and how PIP-UK helped on that journey

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        Have you ever met someone and immediately felt you have met someone who is very special? PIP-UK was recently contacted by Stephen who has Syndactyly,  Stephen is a lovely, charming man who wants to share his story. We met up with Stephen and we…

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PIP-UK is a small charity but we have big ideas. We are always looking for ways to improve the help and support we offer. Of course we need funds to be able to continue, we don’t receive any funding so we have to raise all our funds ourselves. Every penny…

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Winter gloves for #polandsyndrome that will actually fit you

Poland syndrome winter gloves can be hard to come by. When you have one hand smaller than the other or missing fingers. We've found someone who can help

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Our top tips for charities using Twitter are based on 18 months of testing and learning. At PIP-UK we have discovered Twitter is a great networking tool where you can learn useful hints and tips from other small charities. Today we’d like to share what…

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Poland Syndrome

Poland Syndrome Father's are not a group of individuals we hear from. We were delighted when one Poland Syndrome Father agreed to share his experience

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Poland Syndrome doesn't mean you can't do things! Jack shows us how he's learned to tie his laces.

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Find out what it is like to be a trustee and help other people. Supporting families and individuals living with poland syndrome is the life blood of PIP-UK
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