Profile cover photo
Profile photo
Laynson Lim
About
Posts

Post has attachment

Post has attachment
3 years ago today, we were diagnosed with CCHS.. 3 years later, we are living the dreams :)
Wow.... can you imagine, today would be 3 years
that I found out that you were diagnosed with something that has no cure, diagnosed
with what I pray it isn’t but it is… CCHS. 
I still remember, it was a Friday, I was getting ready to go to the
hospital to v...
Add a comment...

Post has attachment
What does family means? Life lesson son.
Dearest son, I guess I am upset about somethings and I want you guys to learn from this lesson.  Mama gave birth to all 3 of you boys and in mama's eyes, there are nobody that mama love most or least, I love all of you guys the same, maybe in different ways...
Add a comment...

Post has attachment
Nursing Home Stay - DONE! You are APPROVED for Medicaid
In order for us to be approved by medicaid, mama had to bring you to Gainesvillee's nursing home.  It's the closest one to us apparently.  But, you may wonder why we had to bring you there?
Add a comment...

Post has attachment
I am 3 YEARS old!!!!
Wow.... what an incredible journey it has been.  I guess the days approaching your 3rd birthday has been challenging for me.  I am not sure why the 1st or 2nd birthday, it wasn't as bad but this year.... everything just came back to me like it was just yest...
Add a comment...

Post has attachment
Our Curse ~ Yes.... it's mine too... Ondine's Curse....
Too bad, we were not there at 2014 CCHS conference, so, we didn't get to watch "Our Curse".  Not that I am not watching my own daily but yes, heard many raving reviews about this short documentary.  And YES, it was nominated for the 2015 Oscar Short Documen...
Add a comment...

Post has attachment
Our Curse ~ Yes.... it's mine too... Ondine's Curse....
Too bad, we were not there at 2014 CCHS conference, so, we didn't get to watch "Our Curse".  Not that I am not watching my own daily but yes, heard many raving reviews about this short documentary.  And YES, it was nominated for the 2015 Oscar Short Documen...
Add a comment...

Post has attachment
Cruising with a child on life support (Trach & Vent)
Yay, we did it AGAIN!  Another one of our Mission Impossible events after knowing we have CCHS. Though, this experience we are sharing is based out of the Houston Port with Princess. We are not sure what other ports or cruise line would do.  We went on our ...
Add a comment...

Post has attachment
A year since the scariest day of my life - 01/24/2015
A year ago, I almost lost you, it was the scariest day of my life.  When they were able to revive you, I thought you had brain damage and holding and bagging in the ambulance.  I imagined the worst, people asking me to turn off your life support machines an...
Add a comment...
Wait while more posts are being loaded