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Jill Osborne
Works at Interstitial Cystitis Network
Attended University of California, Santa Barbara
Lives in Santa Rosa, CA
239 followers|82,888 views
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Jill Osborne

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Looking for some IC friendly salad ideas for the summer?? Author Julie Beyer shared some great salad ideas via the IC Diet Project. She also included three salad recipes: Red, White & Blue Spinach Salad. Creamy Macaroni & Broccoli Salad and Pear & Honey Cole Slaw!
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Jill Osborne

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Start your summer right with IC, bladder and prostate friendly sweet teas so that you can avoid flares and enjoy the warm weather to come! A new diet blog from the IC Network. Do you have a sweet or sun tea that you've created? Please share your ideas!
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Jill Osborne

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The LiNKA Hunner's Lesion IC trial has added many new research centers for patients who would like to participate in this important new study! 
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Elise Battaglia's profile photo
 
Hello Jill,
Would you happen to know if LiNKA trials will make to France? I have been on Elmiron for 15 months now with slight improvement on frequency. I saw your latest video on YouTube where you mention that if the Hunner's lesions are not treated then Elmiron won't work. I find it very difficult to find urologists who knowledgeable about IC with Hunner's. Thanks
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Thanks to MPR for doing a story on our new Food App for Android!
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Our new Android app  will help interstitial cystitis, overactive bladder and prostatis patients pick bladder friendly foods. More than 250 foods rated on the basis of bladder friendly, try it or caution! Now available in the Google Play store! 
The ICN Food List App is now available for the Android device for interstitial cystitis patients. Currently available in the Google Play Store.
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Jill Osborne

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 We are so grateful to the thousands of patients, researchers, clinicians and sponsors for being part of the IC Network family! We work hard, every day, to help patients in need! Your phone calls, notes and e-mails of gratitude and encouragement mean the world to us!  Read our latest newsletter here! 
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New IC study finds that IC patients have lower levels of good bacteria in their gut. Could this be contributing to our symptoms and pelvic pain? The MAPP Research Network is now exploring if bacterial levels change during flares or normalize during periods of IC remission. Bacteria in urine NOT found to be a factor as yet.
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So, do you suggest being tested for the good and bad bacteria via bowel and then treat on outcome of test?
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Could interstitial cystitis flares be caused by candida? A new research study finds higher levels of fungi in the urine of patients struggling with flares. 
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If you're starting to feel overwhelmed about preparing meals for the holidays, IC author and dietitian Julie Beyer​ shares three fabulous recipes in our December #icdietproject blog that will help you simplify the next few days and prepare some wonderful foods including: Spinach Quiche for breakfast, Beef Stew if you're sticking close to home and a fabulous Butterscotch & Meringue Pie! Enjoy! Thank you Julie! 
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One of the best pelvic pain specialists in the world is expanding his practice to New York City. If you've struggled to find a doctor who understands your pelvic pain, Dr. Echenberg might be able to help! Learn more about his practice here!
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The newest edition of the IC Optimist is now available and features Drs Chris Payne, Jeanette Potts and Ken Peters on the new paradigm for IC and pelvic pain. If you haven't responded to IC treatments, this could explain why and give you more treatment options!
This expanded edition of the IC Optimist shares the new paradigm for the diagnosis and treatment of interstitial cystitis, Interview with Dr. Ken Peters & more!
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Story
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Health Educator, Author, Activist, Researcher and IC/BPS Rebel
Introduction
Jill Osborne is the president & founder of the Interstitial Cystitis Networka health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. Representing the IC community, she has appeared radio and TV shows including the PBS “Healthy Body Healthy Mind” television series. She serves as editor of the IC Optimist quarterly magazine and has authored dozens of articles on IC. She spends the majority of her time developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! 
Bragging rights
ICN was the most reliable and first recommended IC/BPS website in a formal study done by the Univ. of London (2013). The ICN was rated the second most reliable website (behind Medscape) by Harvard Medical School (2011)! Jill is proud to support our active duty US Armed Forces by serving for the past three years as a patient representative in the Congressionally Directed Medical Research Program (CDMRP).
Education
  • University of California, Santa Barbara
    Pharmacology (BA), 1980 - 1982
    Pharmacology, Biochemistry, Microbiology, Chemistry - Premed
  • Sonoma State University
    Psychology (MA), 1985 - 1988
    Organizational Development, QWL, Labor-Mgt Relations, Social Psychology, Group Psychology, Workplace Group Modelling
Basic Information
Gender
Female
Work
Occupation
I manage the day to day operations of the Interstitial Cystitis Network, a social advocacy and health education company dedicated to interstitial cystitis, bladder pain syndrome, pelvic pain syndrome, PFD, overactive bladder, ketamine cystitis and numerous related conditions.
Skills
Writing, Editing, Programming, Public Speaking, Coaching, Patient Support, Patient Education, Qualitative Research, Quanttative Research
Employment
  • Interstitial Cystitis Network
    President & Founder, 1993 - present
Places
Map of the places this user has livedMap of the places this user has livedMap of the places this user has lived
Currently
Santa Rosa, CA
Contact Information
Work
Phone
1-707-538-9442
Email
Address
PO Box 2159, Healdsburg CA 95448
This company may have gone bankrupt. This phone number goes to the Interstitial Cystitis Network, a health education business specializing in bladder and prostate disorders.
Public - a year ago
reviewed a year ago
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