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CSF: Chiari & Syringomyelia Foundation
142 followers -
Advancing knowledge through research & education of CM, SM & related disorders.
Advancing knowledge through research & education of CM, SM & related disorders.

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Dr. Aria Fallah describes the issues that commonly go wrong before and after a #Chiari #decompression #surgery. For instance, some symptoms are less likely to improve following surgery, and other problems such as symptom recurrence can happen, as well. Dr. Fallah describes the ways that neurosurgeons and families can work together to try and limit these pitfalls from happening and gives an overall amazing lecture on how patients and their families can avoid these problems altogether.

#neurosurgery #Chiaridecompression #
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Dr. Fraser Henderson reviews what we are learning about the effectiveness of #fusion #neurosurgery in the treatment of medical conditions like #Chiari malformation (especially #complexChiari), #craniocervicalinstability, #EhlersDanlos syndrome and other #connectivetissuedisorders as well as other conditions where #fusionsurgery may be indicated.

#EhlersDanlosSyndrome #ChiariMalformation #CCI #hypermobilitydisorder
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Dorothy Poppe introduces 2018 partner, Chiari & Syringomyelia Foundation, at the unite@thehill in Bethesda, Maryland.

This presentation was given at the 2018 unite@thehill in Bethesda, MD, just ahead of the walk to The Hill in Washington, DC.
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Cathy Poznik introduces 2018 partner, Chiari & Syringomyelia Foundation, at the unite@thehill in Bethesda, Maryland.
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Dr. Jeffrey Brinker gives an excellent overview of the various types of #autonomicdysfunction-- or #dysautonomia-- that many patients with #chronicillness can experience.

He goes into detail about how these #cardiovascular versus #neurological-based dysautonomia issues are diagnosed (e.g. - #tilttable testing versus other clinical exams) and how they can be effectively treated.
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The diagnosis of symptomatic #Chiari with #syringomyelia may require surgery. Most neurosurgeons agree that #posteriorfossadecompression is the treatment of choice to create more space so that CSF flow is restored to the area blocked by cerebellar tissue. Some neurosurgeons suggest an extradural posterior fossa #decompression (PFD) and others suggest a posterior fossa decompression with #duraplasty (PFDD). So, which is better? PFD or PFDD? The trouble is, we just don't know.

Thanda Meehan, research coordinator at the main site of an ongoing research study, describes the study that seeks to answer this question, for good.

#neurosurgery
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Dr. Mark Luciano gives an excellent overview of how #cerebrospinalfluid flow abnormalities can affect the diagnosis and treatment of #Chiari malformation and related disorders like #syringomyelia, idiopathic intracranial hypertension (#IIH), #CSFleak and other conditions.

#CSFflow #CSFdisorders #idiopathicintracranialhypertension #pseudotumorcerebri
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Dr. John Heiss walks us through the current status of #syringomyelia research. Dr. Heiss discusses what has been learned over the years about the progression, symptoms, diagnosis and treatment methods. He acknowledges the gaps in knowledge that we still need to fill... including understanding what causes syringomyelia to form, in the first place!
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Dr. Kevin Lasko describes his recent work with a young woman experiencing life-altering #dystonia and dystonic events. While Dr. Lasko cautions that this information is just from a single case study, the experience suggests that intense #somatosensorytherapy may be a possibility to manage #neurologicaldisorders such as dystonia.
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As we learn more about #ChiariMalformation, experts in the field are beginning to agree that treatment for this condition is a highly individualized process that is heavily dependent of the various diagnoses each patient has. In this fantastic lecture, Dr. Jeffrey Greenfield describes the method used in his clinic to determine what "kind" of #Chiari malformation each individual patient is presenting with, to maximize the likelihood of doing better following medical or surgical treatment.

For example, a patient with Chiari and #craniocervicalinstability or #EhlersDanlosSyndrome may need a different type of treatment than a patient with Chiari, alone.
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