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CSF: Chiari & Syringomyelia Foundation
135 followers -
Advancing knowledge through research & education of CM, SM & related disorders.
Advancing knowledge through research & education of CM, SM & related disorders.

135 followers
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CSF: Chiari & Syringomyelia Foundation's posts

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#Chiari malformation and Chiari #decompression surgery is not always so simple. Dr. Ian Heger discusses the concept of "complex" Chiari malformation and how related conditions like #EDS (a connective tissue disorder) can make surgical treatment very difficult.

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Dr. Curtis Rozzelle discusses the approach taken at Alabama Children's (University of Alabama - Birmingham) to pediatric Chiari patients. Surgical techniques generally are based on the type of Chiari and the symptoms that patients present with. This lecture was given in February 2017 in Birmingham, Alabama.

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Susan Chalela, PT discusses how #physicaltherapy can help patients with #hypermobility. The most important takeaway? Avoiding physical exercise may be counter-productive-- the best thing to do is to know the biggest triggers of pain which are inactivity and abnormal movement. Getting moving and being careful to have normal and safe #rangeofmotion can help many symptoms.

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Some patients with #EhlersDanlosSyndrome (#EDS) and other connective tissue disorders may go to the urologist with bladders that are holding 4 times the normal amount of urine because their tissues are so stretchy! Learn more about this lesser-known issue in patients with #Chiari and #hypermobility issues from #urology expert, Dr. Jonah Murdock.

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Dr. Jeffrey Greenfield talks about #Chiari malformation, the different issues that make treatment so complicated, and what many physicians are doing to help more patients and families at the CSF NYC Chapter Meeting held at Weill Cornell Brain & Spine Center in New York, NY.

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Dr. Sunil Patel discusses the various neurological and spinal disorders that are commonly associated with Ehlers-Danlos syndrome, which is a disorder caused by a defect in the individual's connective tissue. This connective tissue disorder seems to run in families and there are different types of #EDS, the most common of which is #hypermobile type.

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Dr. Catherine Mazzola discusses what hydrocephalus, how it is diagnosed and treated in children and how she and a team of fellow expert neurosurgeons were able to develop clinical guidelines for treatment of pediatric hydrocephalus. This lecture was jointly presented by CSF and the New Jersey Pediatric Neuroscience Institute (NJPNI).

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FIXED AUDIO Dr. Eric Trumble talks about some of the pesky, frustrating and sometimes scary complications and secondary conditions of Chiari malformation at the October 3rd CSF Orlando Chapter meeting.

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Dr. Mark Souweidane gives an excellent description of #syringomyelia and helps explain why there are so many variations of #Chiari. This lecture was made directly possible by YOUR donations!

#WeDidItDecember #education #awareness

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It was an uphill battle, but professionals are starting to see the connections between #Chiari malformation and how a person's mind works. Dr. Gerald Grant introduced this growing body of knowledge at the CSF Chapter meeting , support group and educational lecture in Palo Alto, California.

Your donations directly helped to support this meeting that benefited local families. It also helped people around the country as it was able to kick off a full year of analyzing this concept of #cognition in more detail! #WeDidItDecember
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