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Heather Cole

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We were done. We had 18 month
old twins and we had been assured that we would never conceive on our own. We
were okay with that. We had made the decision to "chance it." We understood that
it was highly unlikely that it would ever happen but we wanted to...

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Landen, The Lion Heart
On December 15th, 2014 Tammy Bowers' innovation was highlighted on Beehive Startups web page.  The following is a summary of that interview. Just after Landen was born, his father, Joe Bowers, raced to the hospital gift shop, quickly purchased a stuffed lio...

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Looking Back at 2014
2014 has been a year of change and development for the Noonan Syndrome Foundation. We would like to thank everyone for the role they played to help make the Noonan Syndrome Foundation successful. The Executive Leadership Team, Board of Directors, and staff ...

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My Son George-Sarah Eastaugh
my name is Sarah and I am from Essex, England. My sons name is George. He was
born 3 rd September 2013. The
pregnancy was uncomplicated, though I did find out at 34 weeks I had
gestational diabetes. George
was born at 36 weeks, a healthy weight of 6lb 4...

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If Only For a Moment--Heather Cole
The first
time I peered into the cloudy glass window, through safety bars and clumps of
advertising stickers, I froze.  The
American bounty of familiar food filled the shelves—Jif peanut butter, snickers
candy bars, ruffled potato chips, Keebler 
crackers a...

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To Compare is to Devalue--Heather Cole
Heather and Harmony and Lili Harmony's Voice: The Perfect Family “I’m pregnant.” The words came
without warning. She simply dropped them into a lull in the conversation as
though she were making an everyday observation. She might have said it was
supposed t...

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Lee Robinson--Growing Up with a Soldier
This is a short story on what growing up with a brother
with noonan syndrome is like from my point of view. I am 22 and Connor is 20. As children Connor and I were the
best of friends. I have little recollection of knowing he was different until
primary sch...

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Lina Windheim--Overcoming the Odds
I'm Lina and I come from Malmoe, which is the third capital
of Sweden. I’m 27 years old and I have an amazing family: my parents, Ingrid
and Sune and my two sisters, Boel (34 years old) and Ellen (29 years old). I
have a little niece, Michaela and she was b...

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Sarah Kelly--Unravelled
“Are you tired? Worn out? Burned out on religion? Come to me.
Get away with me and you’ll recover your life. I’ll show you how to take a real
rest. Walk with me and work with me—watch how I do it. Learn the unforced
rhythms of grace. I won’t lay anything he...

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Heather Cole--Ten Day Cancer Scare
I will never forget what it
felt like to walk in darkness so dark my mind could not grasp up or down, right
or left, forwards or backwards. With hands outstretched I felt for every limb,
every leaf, trying to navigate through brush and around trees without ...
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