Apply for the EURORDIS Summer School 2017 and get involved in online training on rare disease medicines R&D!
http://www.eurordis.org/news/train-become-expert-medicines-rd

EURORDIS is today launching Rare Barometer Voices, a new interactive survey panel available in 23 languages! Register to take part in surveys to make your voice heard: www.eurordis.org/voices #RareBarometer

Find out who won the EURORDIS Awards 2016!

Read Nicola’s story to learn how a diagnosis of scleroderma completely changed her life

EURORDIS & the European Patients' Forum call for European collaboration on medicines pricing to improve patient access

The official 2015 +Rare Disease Day   video is out now! Bring people living with a rare disease out of the shadows and into the spotlight! Watch and share the video with your friends, families and colleagues. http://www.rarediseaseday.org/article/watch-and-share-the-official-rare-disease-day-2015-video

Live: Participants raising hands at #ECRDBerlin. You too, raise and join your hands for rare diseases! http://www.rarediseaseday.org/join-your-hands/

Live! https://www.facebook.com/eurordis/app_147928242041126 Follow the twitter feed of the European Conference on Rare Diseases & Orphan Products and join the discussion with #ECRDBerlin

+EURORDIS TV video of the week:  A Father's Words.

A poignant reflection on the trials and joys of Rett Syndrome from the perspective of fathers. Created by Jason Rothschild, father to Zoe.

Video debuted at +reverserett