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EURORDIS
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Rare Diseases Europe - The Voice of European Patients
Rare Diseases Europe - The Voice of European Patients

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EURORDIS's posts

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Register now to take part in a multi-stakeholder debate on access to rare disease therapies! Fee waived for patient representatives.

http://www.eurordis.org/news/take-part-multi-stakeholder-debate-access-therapies

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Apply for the EURORDIS Summer School 2017 and get involved in online training on rare disease medicines R&D!
http://www.eurordis.org/news/train-become-expert-medicines-rd

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EURORDIS is today launching Rare Barometer Voices, a new interactive survey panel available in 23 languages! Register to take part in surveys to make your voice heard: www.eurordis.org/voices #RareBarometer

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Find out who won the EURORDIS Awards 2016!

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Read Nicola’s story to learn how a diagnosis of scleroderma completely changed her life

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EURORDIS & the European Patients' Forum call for European collaboration on medicines pricing to improve patient access

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The official 2015 +Rare Disease Day   video is out now! Bring people living with a rare disease out of the shadows and into the spotlight! Watch and share the video with your friends, families and colleagues. http://www.rarediseaseday.org/article/watch-and-share-the-official-rare-disease-day-2015-video

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Live: Participants raising hands at #ECRDBerlin. You too, raise and join your hands for rare diseases! http://www.rarediseaseday.org/join-your-hands/
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Live! https://www.facebook.com/eurordis/app_147928242041126 Follow the twitter feed of the European Conference on Rare Diseases & Orphan Products and join the discussion with #ECRDBerlin
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+EURORDIS TV video of the week:  A Father's Words.

A poignant reflection on the trials and joys of Rett Syndrome from the perspective of fathers. Created by Jason Rothschild, father to Zoe.

Video debuted at +reverserett 
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