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Amber S Schlaht
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49 followers
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Hope - Rare Disease Day
This past weekend we went to San Antonio for The Atypical HUS Foundation conference. It's always such a good time. Seeing those that have become family. Seeing those that KNOW what we go through. Knowing that we are not alone. Since we have been home, I hav...

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spleen infarction
I wanted to post an update here as I have had a lot of people asking why I was having scans done earlier this week and for those in general who want an update on my recent health scare. Please know that I don't post this type of updates for attention. It is...

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June didn't turn out as planned. Life can change in the blink of an eye.
I came to my blog, thinking "I haven't posted in a while!  I need to fix that!" Then I saw my last post and my heart sank. You see, June turned out to be a very, very hard month for me.  Maybe it's time I posted about it here. June 10th, I woke up early and...

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June didn't turn out as planned. Life can change in the blink of an eye.
I came to my blog, thinking "I haven't posted in a while!  I need to fix that!" Then I saw my last post and my heart sank. You see, June turned out to be a very, very hard month for me.  Maybe it's time I posted about it here. June 10th, I woke up early and...

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It’s been a while since I have posted an update here. We have had a lot going on. In November 2015, we attended an Alexion aHUS luncheon in Dallas, TX. In December 2015, I spoke at an aHUS meet-up in Phoenix. I shared my story with aHUS and represented The ...

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What's the difference?
I have had several people talk to me about my health lately and have said "I can't believe Crohn's gave you aHUS"....or "I can't believe you had to get your thyroid removed due to aHUS."  The above are not the case AT ALL. So I wanted to take a few minutes ...

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Why I chose a total thyroidectomy over RAI treatment
This topic is something that I have been thinking about posting for a while, but have kept it to myself. Mainly, because its a hot topic for me and it really gets under my skin. I want to preface this with a little background about me. Most of you that have...

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Why I choose a total thyroidectomy over RAI treatment
This topic is something that I have been thinking about posting for a while, but have kept it to myself. Mainly, because its a hot topic for me and it really gets under my skin. I want to preface this with a little background about me. Most of you that have...

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What she said was exactly what I needed to hear today.
Every time it is time for an infusion, I get a "this f*cking sucks! why is this my life?" attitude. I hate going, I hate the side effects, I hate getting an IV in my chest, I hate the unknown of the disease, I hate the unknown of the drug. I hate everything...
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