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The Neurofibromatosis Clinics Association (NFCA) of Pittsburgh
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Growing awareness and seeking hope for people with Neurofibromatosis and their families.
Growing awareness and seeking hope for people with Neurofibromatosis and their families.

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The Neurofibromatosis Clinics Association (NFCA) of Pittsburgh's posts

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If you haven’t signed up for the NF Registry you can use this link to get registered. This patient-centered database allows those living with any form of NF to contribute to research and stay up-to-date on studies of potential treatments. 

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Each year Cupid’s Runs are hosted in cities across the U.S. to raise funds for the Children’s Tumor Foundation. Last year they raised over $3 million. Pittsburgh was home to the largest fundraising team this year with one group raising more than $83,000!

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Save the date for the 23rd Annual Walk in the Wild! We’ll host it April 29 at Pittsburgh Zoo & PPG Aquarium. We’ll post the full invite and registration info as we get closer to the event.
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Save the date for our “7th Annual Bowling Over NF” fundraiser. This year’s event will be held on Sunday, July 16 at Paradise Island Bowl. Use this link for more info 

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A UK toddler with NF1 sees growths shrink five months after beginning clinical trial of MEK inhibitor.

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A phase I clinical trial of Selumetinib has shown some early promising results in children diagnosed with NF1.

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Happy New Year! We wish you a peaceful and prosperous 2017.
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If you haven’t signed up for the NF Registry you can use this link to get registered. This patient-centered database allows those living with any form of NF to contribute to research and stay up-to-date on studies of potential treatments. 

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Save the date for the 23rd Annual Walk in the Wild! We’ll host it April 29 at Pittsburgh Zoo & PPG Aquarium. We’ll post the full invite and registration info as we get closer to the event.
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