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Kelly O'Neill Young (RAwarrior)
199 followers -
Presenting from the patient's point of view.
Presenting from the patient's point of view.

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Eight most memorable quotes from Doctor Strange applicable to anyone on a journey to overcome physical limitations, illness, or injury.

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Trigger finger in rheumatoid arthritis, or stenosing tenosynovitis, is common. Understanding what causes trigger finger and how it is treated.

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"'Remaining pain' is a current term for joint pain PRD experience despite treatment with DMARDs like methotrexate. This term is used whether or not other symptoms such as swelling remain. Remaining pain studies suggest that the role of pain in Rheumatoid Arthritis / Disease is not as clear as it once was."
1st in a series on the nonsense of "remaining pain" in RD

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8 inspiring quotes from the Doctor Strange move:
#6 Dr. Strange: “Life without my work…” Christine Palmer: “Is still life.”
(Life is worth living. Period. No ifs, ands or buts.)
#7 Dormammu: “You will suffer.” Dr. Strange: “Pain is an old friend.”
(When pain becomes a constant companion, we come to accept it.)

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Comparing mechanical care to medical care may seem odd at first,
"But too often, a patient’s 'complaints' are met with comments like 'Your hands don’t look bad,' 'At least you can still put your arms over your head,' or 'You’re too young.' (Or worse.)
Knees are worth more than break pads. And what’s going on in my neck is as important as the belts in my truck."

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"Two things stay with me: a deep respect for doctors who care for patients and equal disgust for those who work in medicine and ignore patient testimony.

"If my son had died, we would have been told it was due to SIDS (sudden infant death syndrome). However, the real cause would have been a lack of attention to patient testimony"

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Interview with my lovely scientist daughter about Why It's So Hard to Cure RA / RD. Some specific limitations of generalizing research to humans. Visiting Rosalind Franklin University of Medicine and Science. 

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"Amateurs" changing the world?
Citizen science: Data collection is open to everyone.
12,000 papers in Web of Science on this topic!

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Confronting the challenge with chronic illness of not being able to do what as much as you want to - or could before.

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"The reality was that I was going back into a sharp narrow cage that kept me prisoner, my musculoskeletal frame.
As the chains tightened around my wrists, ankles, and knees, as it became more and more difficult to move. But for everyone around me, life went on as normal. People moved around freely, not asking whether I needed help..."

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