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Cystic Fibrosis Unite
82 followers -
Enabling discussion between those with cystic fibrosis and CF researchers.
Enabling discussion between those with cystic fibrosis and CF researchers.

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Researchers need your help to design a study looking to predict future health in CF and need for treatment. Please get in touch.

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Will you share your patient records? We hope you'll consider it. Herethe Wellcome Trust's head of policy explains why: http://wellc.me/1dJrAW4
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TOMORROW: 19:30 GMT (Sex) Drugs and Rock'n'Roll - the Transition years - adherence and living independently with CF.

19:30 Challenges around the "Transition years" - Dr Alistair Duff, St James' University Hospital, Leeds, UK
19:50 Studying adherence - Dr Martin Wildman, University of Sheffield & Northern General Hospital, Sheffield, UK.
20.10 Challenges of gaining independence - Dr Su Madge, Royal Brompton Hospital, London, UK.

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 (Sex), Drugs & Rock'n'Roll - the Transition years.  28th November 19:30 GMT.   
Drs Alistair Duff (St James' Hospital, Leeds), Martin Wildman (Northern General Hospital, Sheffield) and Su Madge (Royal Brompton Hospital, London) discuss adherence and living independently with CF.
First in a two-part series. Pregnancy and CF in a future event.

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Penny Agent, Director of Rehabilitation and Therapies at the Royal Brompton Hospital discusses recent research in CF physiotherapy - vibrating vests, non-invasive ventilation, effects of exercise and more

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Why ….. ? A new series examining the clinical research evidence for the way cystic fibrosis care is delivered.  We begin with "Why do we use intravenous antibiotics in the way we do?" - examining why tobramycin is used and why it is commonly only given once a day.

What is YOUR "Why...?" Let us know!

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Recording from Cystic Fibrosis Genes & Gene Therapy event featuring members of UK CF Gene Therapy Consortium now available online.

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Link now available for LIVE online Cystic Fibrosis Genes & Gene Therapy event on Saturday 29th June (13:00 BST). Set up your audio and (if you have one microphone headset). Submit questions on the site via http://cfunite.org/events, via email (info@cfunite.org), via twitter (@cfunite) or via facebook (cfunite) 

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Join us June 29th for cystic fibrosis Genes and Gene Therapy - ask your questions live. (times BST)

Updates from April & May in the world of CF drug news and development
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