Profile cover photo
Profile photo
Cystic Fibrosis Unite
Enabling discussion between those with cystic fibrosis and CF researchers.
Enabling discussion between those with cystic fibrosis and CF researchers.

Cystic Fibrosis Unite's posts

Post has attachment
Researchers need your help to design a study looking to predict future health in CF and need for treatment. Please get in touch.

Post has shared content
Will you share your patient records? We hope you'll consider it. Herethe Wellcome Trust's head of policy explains why:

Post has attachment
TOMORROW: 19:30 GMT (Sex) Drugs and Rock'n'Roll - the Transition years - adherence and living independently with CF.

19:30 Challenges around the "Transition years" - Dr Alistair Duff, St James' University Hospital, Leeds, UK
19:50 Studying adherence - Dr Martin Wildman, University of Sheffield & Northern General Hospital, Sheffield, UK.
20.10 Challenges of gaining independence - Dr Su Madge, Royal Brompton Hospital, London, UK.

Post has attachment
 (Sex), Drugs & Rock'n'Roll - the Transition years.  28th November 19:30 GMT.   
Drs Alistair Duff (St James' Hospital, Leeds), Martin Wildman (Northern General Hospital, Sheffield) and Su Madge (Royal Brompton Hospital, London) discuss adherence and living independently with CF.
First in a two-part series. Pregnancy and CF in a future event.

Post has attachment
Penny Agent, Director of Rehabilitation and Therapies at the Royal Brompton Hospital discusses recent research in CF physiotherapy - vibrating vests, non-invasive ventilation, effects of exercise and more

Post has attachment
Why ….. ? A new series examining the clinical research evidence for the way cystic fibrosis care is delivered.  We begin with "Why do we use intravenous antibiotics in the way we do?" - examining why tobramycin is used and why it is commonly only given once a day.

What is YOUR "Why...?" Let us know!

Post has attachment

Recording from Cystic Fibrosis Genes & Gene Therapy event featuring members of UK CF Gene Therapy Consortium now available online.

Post has attachment
Link now available for LIVE online Cystic Fibrosis Genes & Gene Therapy event on Saturday 29th June (13:00 BST). Set up your audio and (if you have one microphone headset). Submit questions on the site via, via email (, via twitter (@cfunite) or via facebook (cfunite) 

Post has attachment
Join us June 29th for cystic fibrosis Genes and Gene Therapy - ask your questions live. (times BST)

Updates from April & May in the world of CF drug news and development
Wait while more posts are being loaded