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Our Little Acorn
One Pagan Mama, 2 medically fragile children.
One Pagan Mama, 2 medically fragile children.
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Our Little Acorn's posts

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Pagan scouting type stuff
So.... It will cost a small fortune for us to start a SpiralScouts hearth, and it will cost even more by the 2nd year to join a local Pagan group's scouting program.... .....so we're for real on our own. This is my plan: every weekend (because weekdays are ...

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And on and on and on and on and...
So far this year, although cardiology discharged us, we've had the saga of Acorn randomly passing out (apparently it's not epilepsy, the reigning theory is vaso-vagal weirdness), Leaf's hives from hell that lasted a month the first time, and then came back ...

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Mom in the Middle
I know I said I was going to write more. Follow-through has not been my strong point lately. There's a post over on The Mighty about being the mom in the middle - about not quite fitting into various parenting categories. I find, these days, that there are ...

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**
I am at a loss today. I learned that yet another trach mom I know has to face an unbearable truth: her child died. Yet again, due to negligence. Or a nursing error. Or whatever nice words the agency and the police plan to use to explain it away. Always, it'...

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Still here
We're still here. It's been a long summer, and we still have several weeks before school starts, but it seems like it's nothing but drama. Leaf's g-tube surgery went well....but then healing was hard to come by. She rejected all the sutures, and the surgica...

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Long Time, No Post
You know, I felt like things were sort of winding down. Like, without trachs, and with Leaf's g-tube on it's way out (well, ok, out this summer, but it hasn't really been used since September), that there wasn't much else to write about on this crazy journe...

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6 years
6 years ago today, Acorn got his trach. They tell you that sometimes things happen that change your life forever - I'm never sure I believe that really, because every day changes your life forever. You're older, maybe you learned something new, whatever - e...

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An Ending
Today is our very last nursing shift - as of this writing, there is less than an hour left.  Leaf was successfully decannulated (had her trach permanently removed) on the 4th of July. Happy Independence Day indeed. It's just as well - the continuing little ...

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It's Complicated
This weekend Leaf has been in the hospital. We originally figured she had a little cold that was setting off other issues, but our lovely little girl managed to show no virus activity from her swabs....not the first time she's done that and still been very ...

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