On November 3, the FDA will host an unprecedented discussion between the diabetes community and senior agency leadership (both drugs and devices). The event will be live webcast from 1 - 4 pm. We want this to be nothing short of a home run. The event will include a panel of patients (T1 and T2), as well as representatives from ADA, JDRF, and diaTribe. As a community, our job is to present the numerous challenges we as patients face each day, and we need as many opinions as possible to be a part of this discussion! With FDA, ADA, JDRF, and dQ&A input, we have created a survey posted at www.diaTribe.org/survey
. We are asking the entire diabetes community (T1 and T2!) to please fill out this short survey and share thoughts on what's important when it comes to living with diabetes. This feedback will go DIRECTLY to FDA and help influence the conversation on November 3.
To ensure the perspectives of the largest segment of the community are represented, we want to ask you to spread the word on the survey by circulating it to your incredible base of followers. Here are some suggested ways to do it:
Attached are two flyers (created by the talented Mike Lawson!) that provide background and a link to survey. One focuses on the twitter hashtag, #DOCAsksFDA
- most ideal for an audience that is plugged in already. The other flyer is more general and centers on the general scope of the event - “A virtual discussion between the diabetes community and FDA”. Feel free to use whichever flyer you wish.
Tell your followers on twitter or Facebook. Some example messaging for twitter:
Help tell the @US_FDA what matters to people with #diabetes
: diaTribe.org/survey #DOCAsksFDA
What does the @US_FDA need to know about living with #diabetes
? Share your view at diaTribe.org/survey #DOCAsksFDA
What is the biggest barrier to better #diabetes
management? Tell the @US_FDA at diaTribe.org/survey #DOCAsksFDA
Consider writing a blog post about the event - we will be in touch with registration details and an agenda, but for now, we can still get as many patients as possible to take the survey
FDA is currently working on the registration to sign up for this webcast event; as we understand it, this should be posted within the week. We will be in touch with that information and a finalized agenda as soon as we have it. For now, it is mission critical to have a massive response to the survey. We need to show the FDA that patients care about these issues, that patients have valuable input to share, and that the treatment options we have are still not good enough.
Thank you on behalf of our entire team for your help in spreading the word on the survey and about the event. We’re truly excited about the potential to open the lines of communication with the FDA, which for too long has been a black box. We need more patient input into the drug and device approval process, and we see November 3 as a very key avenue to making that happen. Let’s show the FDA how committed our community is.
Adam Brown, diaTribe