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Julieanne Olivier (CupOJo)
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Lived in Brooklyn,NY
478 followers|59,335 views
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I just don't do well with blowing smoke up peoples asses. No really my life is to complicated and to short for that. Do not ever say you tried everything you could to slow your progression ect... and then refuse a simple steroid treatment because it makes loopy for a few days. It's steroids for gods sake. SERIOUSLY?!?!?! WTH.
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Is on Cellcept. After begging to go back on Cytoxan. Blarf. But I feel better than the steroid coaster.
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The badge of honor? I started this group because newbies to MS are annoying. I come from a time when there was only one in injectible. There were no pills on the horizon. If someone said 2013 I would cringe and become annoyed. However, I did not start this group or talk to others with MS who have the mindset that glorifies their fight and demeans others. I ran into this in several other groups. 25 years I have had it so your 13 year knowledge means nothing. Actually, the reason I am annoyed with newbies is because they did not have to suffer for years of one thing,or nothing,and no oral medications. It annoys me beyond belief that some are like I want to take X because it is a pill. While the reason I waited for Tecfidera is because I have NO OPTIONS LEFT. Not because I was so thrilled to have some baby choice about needles or no needles. Buck up inject. I just had my last dose of steroids due to an exacerbation. I am sure it will not be my last. But, I want it to be. While I am doing this I see an online MS friend suffering with an exacerbation using excuse after excuse to not do steroids. Then when I comment I have asked my registered nurse not 5 minutes ago if people with his other conditions can do steroids---he gets all badgey on me. "How long have you had it" The steroid in my wanted to respond "Not long enough to be an arrogant asshole right now" instead I calmly answered. To which he responds "I like my copaxone so I will refrain..." and I was like there is not a choice..He does not have to go off his copaxone. BUT ya know what do I know I only used copaxone for 10 years with chemotherapy and STEROIDS.. BUT YA KNOW...I am just not badge worthy. I am trying to be helpful but discounting me because of ignorance (including my own) is annoying. I miss the newbies filling me in on the new stuff. If I could only cease my jealousy to invite them in again. I can't I just have to stay on my toes WHO WANTS A BACON CHEESEBURGER? Has anyone heard of these new exacerbation treatments with hormone shots? *blinks
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Yeah. Panic attacks after taking them for over 10 years. So now they have to be super duper necessary.
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Is a hemline foot worth it? Or am I just insane o lazy? Actually I was thinking because of the MS and the shakey hands it might be worth it. Any opinions those who sew?
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Have her in circles
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Here is what I am up against. A drug that makes thousands feel great. BUT-1 in 1000 develop a horrible brain bleed that can kill them. There is a way to stop and reverse this brain bleed if caught in time. BUT-because of the brain bleed you can suffer severe disability that can  put you way way worse than you were before. I tested negative for the virus that causes the brain bleed BUT--- I was on a drug that they dont know why it causes people to develop the brain bleed BUT it makes me an at risk patient regardless of my negative test. Statistically this sounds like a really crap idea. Or is it just me being a scaredy cat.
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YEAY THE FDA APPROVED MY DRUG.
The U.S. Food and Drug Administration today approved Tecfidera (dimethyl fumarate) capsules to treat adults with relapsing forms of multiple sclerosis (MS).
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People
Have her in circles
478 people
Tric Marland's profile photo
Ana Patricia Contreras Villavicencio's profile photo
Bhupendra Solanki's profile photo
‫محمد محمد‬‎'s profile photo
Johnson Mark's profile photo
Naveed Ullah's profile photo
Julie Sivic's profile photo
Amy Teston's profile photo
Fred Smith's profile photo
Work
Occupation
Jewelry Maker,Paranormal Researcher,Tarot Card Reader,
Places
Map of the places this user has livedMap of the places this user has livedMap of the places this user has lived
Previously
Brooklyn,NY - Tampa,Fl - Glenbrook,CT - Marietta,Ga - Atlanta,GA - Decatur,GA - Lilburn,GA - Roswell,GA - Cumming,GA - Largo,FL - San Diego.CA
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Introduction
If your here you probably have seen me on another social network. I am googling because filters are your friend. And not everyone on my other social networks is a friend. :)
Political views-New Conservative (meaning I am not a Jesus freak,I think BC is essential to over population,and I am poor). Please consider this before friending me.
Bragging rights
Have Multiple Sclerosis and an incredible sense of humor about it.
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Gender
Female