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Caity Wagner
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Newly Developed Genetic Samples May Improve Research, Testing and Diagnosis
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Cure Rett
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Rett Syndrome Research Trust
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International Rett Syndrome Foundation Website
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Rett Syndrome is diagnosed through multiple ways. Usually, the most common is the visualizing of symptoms in the child. The child can see a neurologist or a developmental pediatrician for a true diagnosis. They use main, supportive and exclusion criteria to...
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When interviewing my neighbor, who has a sister with Rett Syndrome, I discovered that everyday life is not easy. Girls require 24/7 care and will live with their parents for the rest of their lives. They need to be bathed, fed, changed and constantly monito...
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Caity Wagner

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This pedigree shows the occurrences of Rett Syndrome in females and males. We know that most males die soon after birth, as supported in the pedigree. We can tell Rett Syndrome is due to a mutation because none of the parents possess the trait.
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Check out this fundraiser video from 2010! Boston Rett Syndrome Video
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Rett Syndrome was discovered fairly recently, in the 1960's, and therefore lacks research. We do not  know exactly how Rett Syndrome comes about or how to cure it. The best treatment we have is therapy, speech and behavioral, but not a whole lot more.
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The most major thing lacking in a child with Rett Syndrome is communication. Girls with Rett Syndrome usually cannot communicate much, if at all. They usually know a few important words, such as "mom", "dad", "yes", and "no", but not much beyond that. This ...
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This map shows us where Rett Syndrome is most prevalent since December 2009.
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I am a student in high school. I enjoy spending time with friends and family. I am in Timmons biology class and am doing a genetic disorder project. I have chosen to study Rett Syndrome because of personal connections to the disorder. This blog will consist of confirmed information as well as personal experiences and is intended to inform the public about Rett Syndrome.
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