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Cystic Fibrosis Trust
119 followers -
The UK’s only national charity dealing with all aspects of cystic fibrosis.
The UK’s only national charity dealing with all aspects of cystic fibrosis.

119 followers
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Best of luck to Team CF cycling in Prudential Ride 100 tomorrow! Our yellow army includes Pete Moorhouse, who is saddling up for the second time.

"My daughter Ruby, who will be 12 the day before, has CF. We are very fortunate that Ruby is reasonably well, but to stay healthy Ruby takes a lot of medication, treatments and attends regular hospital visits. We are very lucky and so proud of our beautiful Ruby, she manages her condition amazingly and just gets on with it all and never complains. We will continue to fundraise for the Trust to help support them in all the research they do.”
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The ‪#‎PowerOfUs‬ focus on our sharing of stories, but for many it can be a daunting task to open up about cystic fibrosis and tell of their experiences.
We asked blogger and now award-winning author, Tim Wotton, who lives with CF, to tell us why and how he got started in sharing his story with the world.
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Have you heard us on the radio today?

Following our recent survey, we're campaigning to making travel fairer for people with cystic fibrosis, from taking oxygen onto planes to getting affordable travel insurance

Find out more about at http://cysticfibrosis.org.uk/news/travel-fair
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It's here!
CF Week 2015 starts today! Together we can use the ‪#‎PowerOfUS‬ to share our stories, reach out to people about CF and come together in the fight against cystic fibrosis.
Learn more at: http://cysticfibrosis.org.uk/news/cf-week-15-launch
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One week until CF Week returns!
Get ready, because we're going to need you all with us.
Learn more at http://cysticfibrosis.org.uk/news/talking-power
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Following our announcement in March, we’ve now moved our head office as part of our wider plans to ensure we’re in the best possible shape to transform the lives of people with cystic fibrosis.

We don’t expect any disruption to our services as a result of the move.

Our new office will ensure we’re better integrated with our community, and we’ll announce more info about our future plans over the coming weeks.

http://cysticfibrosis.org.uk/news/aldgate-move
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Vertex have opted to name the lumacaftor/ivacaftor combination therapy "Orkambi". This got us thinking, if you were going to name a new drug, what would you call it?
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Who's excited for the London Marathon on Sunday? WE ARE! See you there and good luck ‪#‎TeamCF‬!
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