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Connie J
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Beautiful Stephanie
Meet beautiful STEPHANIE! Age: 9 Stephanie is described as active and optimistic, sensible, cute and she talks a lot. Stephanie gets along well with other children her age and she likes to watch cartoons, and play with Lego's.  Her favorite snacks are potat...
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Handsome JET
Name: JET! Gender: Male Age: 10 Country: China Diagnosis: Congenital left tibial pseudoarthrosis Jet is outgoing, and all his teachers love him. He is polite to
strangers and really likes to be clean. He is also described as energetic and
impatient sometime...
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The Day It All Changed ~ July 7th
July 6, 2017 was like any other day.  We worked hard, then played hard with the kids before crashing early.  When my alarm rang at 2:30 a.m. for an early morning surgery check-in for our littlest guy, it was a new day.  Little did we know it was a day that ...
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Trust Your Mama Gut
If you're a mama to a cutie with spina bifida, you know their unique bodies are a complete mystery, and they keep us on our toes! Add club foot to the mix, and it can make Mama a hot mess trying to keep up.  Or maybe that's just me. We've had miraculous exp...
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To Plae or Not to Plae?
We've had our GoPlae shoes for a couple weeks now. I hear of parents who are able to find cheap shoes for their kiddos' AFOs, and well, I've never had much luck with that.  They don't seem to be deep enough to fit the AFO, they slip off the heel, or they wo...
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Chinese New Year 2017 - Year of the Rooster...and Tea Eggs
I'm not so good at preparing Chinese food, I admit, but there is a favorite of my kids that I have mastered - TEA EGGS! Tea Eggs 6 eggs 5 Tbsp soy sauce 2 tsp salt 2 tsp sugar 2 black tea bags (or 2 Tbsp of black tea leaves) 1 tsp Anise 1 stick cinnamon Sev...
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Part Two ~ A Story Only God Could Write
If you haven't already done so, you might want to read Part 1 before proceeding.   The rest of the story: In December 2016, when we saw Dr. Dobbs at St. Louis Children's Hospital for Kaison's bilateral tenotomy follow-up, we consulted him for Kasidi's spast...
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A Story Only God Could Write
Honestly, I don't even know where to start!  I may have to break this up into two posts.   2016 was kind of a whirlwind for us.  In fact, we are still spinning.  We keep our eyes on the present, barely looking forward at the overwhelming schedule, and rarel...
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That's How We Roll
This mama loves family photo sessions!  And it doesn't seem like a "family" photo without the 7 big kids, but getting all 18 of us together and dressed up has proven nearly impossible since the last family wedding, over a year ago!  The result: no family ph...
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A New Journey
 We are embarking on a new journey.   New for us.  Many have gone before us, and we are so thankful for their experience and wisdom. These tiny feet get so many kisses! Several years ago when we were going through the 'checklist' of medical special needs we...
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