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Kati isSick
61 followers -
Keep calm and be an advocate.
Keep calm and be an advocate.

61 followers
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The NIH at work. Here we seemingly are being told reasonnable things. However the grant applicators who have been refused funding for ME are very prominent scientists, namely world reknown virus hunter Ian Lipkin and award winner geneticians Ron Davis and team. These people desperately want to help us, including by eating red hot chili peppers, and while they can easily get NIH grants for other conditions, they have been refused more than once now by NIH. Something is very fishy. 

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My blog post in honour of the Severe ME Awareness Day. 

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I have posted 2 new patient stories today. We cannot be silent over the way patients with ME and FM have been treated.

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Anita shares her story 

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I started a new blog. Here is the very first post

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If you live in the US, I am asking to take a moment and sign this petition. There are over 2millions patients with ME in the US and abyssmal funding. This has to change. Thank you. 

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2 weeks post exercise test
You can not imagine how much energy this video took. My brain was screaming after these 3 minutes and all I could do was lay down and pull the covers over my head. I am still un-recovered. I cannot go out every day. I use the electric scooter at the grocery...

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Another update. I hope I makes sense. 
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