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shelley colquitt
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Shelley Colquitt is the mommy of two beautiful girls Lauren and Zoe.Her youngest daughter was born at 40 weeks. As we were celebrating the success of the labor and delivery my baby stopped breathing. Later she was diagnosed as have a rare disease that only at the time (11 years ago) 163 babies in the world had. I had to learn to take care of my baby who had a trach and was on life support machines 24 hours a day.Not only is Shelley busy with her two girls and works very hard to keep her youngest chronic medically complex child healthy, she also volunteers at a shelter for abused / neglected children and I also volunteer as a teachers aid for globally delayed children.
Shelley Colquitt is the mommy of two beautiful girls Lauren and Zoe.Her youngest daughter was born at 40 weeks. As we were celebrating the success of the labor and delivery my baby stopped breathing. Later she was diagnosed as have a rare disease that only at the time (11 years ago) 163 babies in the world had. I had to learn to take care of my baby who had a trach and was on life support machines 24 hours a day.Not only is Shelley busy with her two girls and works very hard to keep her youngest chronic medically complex child healthy, she also volunteers at a shelter for abused / neglected children and I also volunteer as a teachers aid for globally delayed children.

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Don’t let go of me, momma!!
Don’t let go of me, momma!! Those were the words that
Mighty Z kept saying to me today during her CAT scan. How many times this
little girl has told me not to let go of her? 1,000? 10,000? More?  Every time she has ever had to go through
something that frig...

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no post in my trauma 

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There is no post in my trauma
When you have a child who is medically fragile and have gone
through stuff that no mother should ever have to see; you are often told that
your panic attacks are due to PTSD (post-traumatic stress disorder) from
doctors, therapists, family members, and frie...

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The secret heart of a parent with a medically fragile child
The secret heart of a
parent with a medically fragile child feels, like being lost at sea with the
rain pouring down, there is no one around to help put your feet on solid
ground. Your world overwhelms you and you don't know if you can walk or if you
will d...

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A 16 year old's view point on how to raise a non special needs child along side a special needs child

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I have issues
Walking this road of special needs and adjusting to this “New Normal” world is difficult no matter the diagnosis, simply because even though you are living in this New Normal world everyone else (so it seems) is living in “the regular normal world.” Besides...
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