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Vasculitis Patient-Powered Research Network
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V-PPRN Patient-powered clinical vasculitis research.
V-PPRN Patient-powered clinical vasculitis research.

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"Innovative PCORI-funded research project is testing care for patients with Parkinson’s disease using video visits with specialists. https://vimeo.com/217553148

What do you think about the concept of telehealth?
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EDUCATIONAL WEBINAR: Pregnancy and Family Planning Concerns of Women with Vasculitis with Megan Clowse, MD, MPH, Duke University Hospital

Register today: http://ow.ly/z4NB30jjQCn

Many women with #vasculitis wonder whether they should stop or continue their medications during pregnancy or breastfeeding – is it riskier to stop them or continue them? We will talk about the safety, risks, and benefits of medications during these two periods. At the end of the webinar, you should have a better idea about how to weigh the risks to you, and a baby, from your disease and medications.
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Is it possible to predict & prevent autoimmune conditions? Understand what the research tells us by joining our informational webinar hosted by CrealyJoints in partnership with the VPPRN on Tuesday, January 23 from 6:00-7:00 pm EST.

REGISTER TODAY: http://ow.ly/TB0J30hSElA
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http://ow.ly/cecn30hGezk

The role of the gut microbiome in systemic inflammatory disease

The role of the gut microbiome in models of inflammatory and autoimmune disease is now well characterized. Renewed interest in the human microbiome and its metabolites, as well as notable advances in host mucosal immunology, has opened multiple avenues of research to potentially modulate inflammatory responses. The complexity and interdependence of these diet-microbe-metabolite-host interactions are rapidly being unraveled. Importantly, most of the progress in the field comes from new knowledge about the functional properties of these microorganisms in physiology and their effect in mucosal immunity and distal inflammation. This review summarizes the preclinical and clinical evidence on how dietary, probiotic, prebiotic, and microbiome based therapeutics affect our understanding of wellness and disease, particularly in autoimmunity.
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Rocking it at the #ACR17! Why are we at the American College of Rheumatology annual meeting?
- To present our research!
- Learn about other vasculitis research studies being conducted around the world
- To provide thousands of rheumatologists with educational materials about vasculitis
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Flu season is fast approaching! Are you ready? Learn about vaccines and vasculitis to help you prepare for the flu season http://ow.ly/iQPh30g6mVY

Don't have time to watch it all? Go to the https://youtu.be/yGOhViqT2pQ?t=17m27s and we will take you directly to the section on influenza.
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http://www.vasculitisfoundation.org/2017symposium/
UPDATE: The New 2017 Vasculitis Symposium Resource Page
The Vasculitis Symposium is now over, but a lot of great information is now available to everyone.

You can access the 2017 International Vasculitis Symposium presentations directly at http://ow.ly/OCFL30dvMKy.
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April is National Minority Health Month! #NMHM17 http://ow.ly/syuw30aRUwM
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New tool allows access to paywalled research papers for free! http://unpaywall.org/
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Invisible illness awareness day panel debunks ailment stereotypes http://ow.ly/6hoM30az6cP
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