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Sally Burch
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178 followers
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GET out!
GET = Graded Exercise Therapy.   This is a "therapy" that the NHS still suggests will help people with ME. The premise is almost plausible and runs something like this (my words): Exercise is good for everybody, so no matter how ill you are it is always goo...

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Sally Burch commented on a post on Blogger.
Greg.. Your efforts have not been wasted! You have helped so many - me included.

I agree however that had the establishment listened to you and the other early advocates, that things might now be different. Perhaps I would not have been advised to "take 3 short brisk walks a day" when first ill. Perhaps I would have received early treatment that would have prevented decline.

Yet once ill, and searching for answers I found you, and others, who gave me the advice I needed. You may not have brought about the changes you sought (at least not "yet") but you made a difference for me and many other patients like me. Thank you.

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Hydro-ease - My First Float
Earlier this year I booked "a float" with the lovely Vivian of Hydro-ease.   The idea is that you take an hour (or more) to float in a warm bath of Epsom salts.  The water is kept at an even body temperature, and because of the high salt content you really ...

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More than a Year!
Agility took something of a backseat for me in 2015 as my health became rather more rubbish, and the exertion of agility - even from the scooter gradually became too much.  So it has been over a year since I last posted here. In 2016 however, thanks to an o...

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Guest Post by Simone: Far too many stories like this!
Thanks to Simone for this guest post, which was inspired by the recent blog post by Rosa Rainbows: "How me and my M.E became worse" Simone writes: There are far too many stories like this. People with ME/CFS are being told by many health professionals that ...

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