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Faye Upston
41 followers -
Wife & Mother of four lovely Boys. CF Survivour!
Wife & Mother of four lovely Boys. CF Survivour!

41 followers
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Please help if you can, I know this family and they could really use your help right now. Thank you
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The Australian Kalydeco Affair
discrimination dɪˌskrɪmɪˈneɪʃ(ə)n/ noun 1 . the unjust or prejudicial treatment of different categories of people. On Thursday 31st July 2014 the Department of Health (DOH) convened with Australian CF Clinicians and Cystic Fibrosis Australia, they met as st...
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Kalydeco for Australians: The Painful Protracted Process
Prepare yourself, it has been, and still is, a   L O N G   L O N G  process, so here I go..... Since last blogging I have been very busy with the Australian  #YesToKalydeco Campaign. Can you believe it?! Over two years since G551D, CF patients in the US gai...
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Please watch and share. Thank you!
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Epic Hassle (but I got by with a little help from saccharomyces boulardii)
"Saccha ... sacch... sacca-what?".. I cannot deny I had to watch a youtube video to get the pronunciation of this right! Saccharomyces boulardii, pronounced:  sāk'ə-rō-mī'sēz' or ' SAK a roe MYE sees boo LAR dee eye LYE',  got it?  Saccharomyces boulardii a...
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