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United Mitochondrial Disease Foundation
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Check this out! http://ow.ly/KQ6vy
Stealth BioTherapeutics announced the start of a new clinical trial for patients with Mitochondrial Myopathy. On February 13, 2015, Stealth BIOTHERAPEUTICS CEO Travis Wilson detailed the new clinical trial, outlined which patients are eligible, and other important details.
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http://ow.ly/KQ5t4 Hope to see you there!#UMDFSupprt
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Our next Congressional Mitochondrial Disease Caucus Briefing in on April 16th. Ask your Congressman to attend ---- it is how we educate the House and Senate about the needs of our community. http://ow.ly/KQ3vs #UMDFAdvocate
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A researcher at University of North Carolina, Prof. Maxine Eichner, working with UMDF, is writing about the rising numbers of medical child abuse charges being leveled at parents of children with genuine medical issues like mitochondrial disease. That researcher is trying to get a rough count of how often such charges are getting made against parents, and of how these charges are being resolved. Unfortunately, no centralized records are kept of these charges.
To get a better count of how often these charges are getting made, we are asking for your help. If charges of medical child abuse have been made against you or a member of your family, can you please let us know by filling out this survey? http://ow.ly/KPYp9
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If you live in the Great Lakes Region --- Educate yourself and tell your physician and any other health care worker to attend the UMDF Regional Symposia in Lansing, MI on May 1 and 2! http://ow.ly/HbUG3 #UMDFEducation
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Be the Hope, Heart and Light for our families
by making a donation to our Spring Appeal today! http://ow.ly/KQMXj
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are getting made against parents, and of how these charges are being resolved. Unfortunately, no centralized records are kept of these charges.
To get a better count of how often these charges are getting made, we are asking for your help. If charges of medical child abuse have been made against you or a member of your family, can you please let us know by filling out this survey? http://ow.ly/KPYp9
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Check out the 2015 Symposium site. That is where you can see the family program and apply for scholarships. Hope to see you all in the DC area in June.#UMDFSymposium http://ow.ly/KQ14o
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Will you join us on June 18 for Day on the Hill? We need your complete information by April 30th if you plan to participate!http://ow.ly/KPTCj #UMDFAdvocacy
Please take the survey titled "New Survey". Your feedback is important!
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888-317-8633