Does anyone have any strong opinions about the government's plans to alter Special Educational Needs arrangements, giving parents more control over the finances associated with their SEN child/ren's provision? I do! Care to share?
He's 10, almost 11, and he's got Duchenne Muscular Dystrophy. He's still walking but struggling increasingly. I am in a constant battle with the school to get them to include him in even the simplest activities. He has a statement of SEN which means the school receives substantial additional finance in order to support him, yet they still try to leave him out when it comes to clubs, trips, sports and almost everything else. I always fight them and am generally successful because legally they don't have much of a case but it's exhausting and miserable. Their first suggestion is always that I should go everywhere with him which is impossible because I have to work. But even if I didn't, it's not the solution. His body may be letting him down but in his mind he's 'one of the lads' and the last thing he wants to be is the sickly little kid, trailing along at the back with his mother. I'm sure if I was responsible for managing the budget allocated for his educational support I could provide him with a much better, more inclusive experience.
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