thank you for curating these tweets. This is a complex argument spanning many different areas - privacy, social good, innovation - intended and unintended circumstances, whether the process of informing the public has been optimal, ownership of data. I do know that as a patient I want certain answers that I hope will be provided with data. I also want to make sure I am not unfairly excluded from treatments without my knowledge of the data I have about myself or unintentionally given away. As a researcher I want to make sure that these data are used in a robust and meaningful way and drives for cost effective care -and shows us the choices.
From a conversation point of view I hope that all these tweets /smedia activity can result in a better outcome for all.