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michele1218
1,103 followers
1,103 followers
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My Bald Beauty!
A week ago I witnessed by 4 year old turn into a Young Adult right before my eyes.  Lets back-up....When Addie first started losing her hair, I cut it to about a bob length to make it more manageable and less tangly.  She didn't want me to cut it (she never...

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Consolidation Phase + Update!
I didn't mean to leave you all hanging, I promise!  We have settled in so nicely at home and returned to our normal activities!  We've been having playdates and seeing our friends, started Physical Therapy (which she LOVES), enjoying her new swing set outsi...

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Addie is in REMISSION!
Hi Everyone!  Its been a little before I have updated as we have been settling in at home and trying to find our new "way".  I updated on my Instagram (@Michelebell21) when we came home, so hopefully you can follow me there, as sometimes its easier and fast...

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Day 19
Addie's ANC is up to 50 FINALLY!  This is the highest its been since it fell from 60 about a week ago.  She has 3 different oncologists on her case and her doctor today said he would feel most comfortable with keeping her here until we saw her ANC at 100.  ...

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Day 16 & Catch-Up!
We've been in a "holding pattern" here the last few days just waiting for her ANC to go up, so I apologize for the lack of updates! We played all morning on Thursday while she was out of bed and went from one activity to the next.  She was super energetic a...

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Days 10, 11 & 12
Not much to report, other than Addie's ANC (Absolute Neutrophil Count) went up to 20 yesterday (Day 11) which was really nice to see - its been holding steady at 0.  We finally got her to take a shower tonight - she has been terribly afraid and unwilling to...

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Day 9
Day 9 (8/26) - Today was pretty uneventful - and I am happy about that! A lot of family came to visit, Addie did a lot of coloring and had an awesome appetite again!  Her levels are still low (which is to be expected) and her fevers are staying away.  The o...

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Day 7 & 8
Day 7 (8/24) - Today was amazing! Addie had an excellent day and the antibiotics finally started kicking in.  Her blood culture came back showing she did in fact have a bacterial infection called Streptococcus Pneumonia.  This is very common - something we ...

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Day 6
8/23 - Addie's temperature was up and down throughout the night, never exceeding 100.8, but to lean on the side of caution the doctor decided to give her a broad spectrum antibiotic to kill anything if it is in fact a bacterial infection.  They also took bl...

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Days 4 & 5
*I just need to take a moment to say thank you to everyone who has reached out to lend strength, support and prayers as well as offers to connect us to those who have walked this path before.  We are totally overwhelmed (in a good way!) and just trying to s...
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