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Kyle Mary Herschelman
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33 followers
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Taking A Chance On Grace
Last Sunday afternoon, Kyle, Grace and I embarked on a new adventure on this journey, a trip to Morristown, New Jersey, to take the first step in participating in a clinical trial for a drug called RT0001 with a California-based company called Retrotope.  G...
Taking A Chance On Grace
Taking A Chance On Grace
a-grace-filled-journey.blogspot.com
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Trial And Adventure
When Grace was diagnosed with INAD in November 2014, we were devastated to know there was no cure for her condition, even worse there were no treatment options. We were told to continue with therapy and just give Grace the best life that we could. So, we to...
Trial And Adventure
Trial And Adventure
a-grace-filled-journey.blogspot.com
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It's Time For Grace Plates
They’re baaaack!  It’s time again for one of our very favorite INAD fundraisers - temporary Grace license plates!  And while Kyle and I still haven’t decided what to get on our vehicles just yet, we can’t wait to see all the fun things people choose. This w...
It's Time For Grace Plates
It's Time For Grace Plates
a-grace-filled-journey.blogspot.com
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A Very Special Birthday Celebration
We've had the pleasure of meeting some really awesome people on our Grace-Filled Journey, and tonight, we got to celebrate the 60th birthday of one of them. I can't say that we met Dave Kane because of Grace's illness. We knew him before we even had Grace, ...
A Very Special Birthday Celebration
A Very Special Birthday Celebration
a-grace-filled-journey.blogspot.com
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Fridays Are For Fun!
For the past five years, Fridays typically mean physical therapy in Springfield for Grace. Before she was diagnosed with INAD, we had heard some really great things about Kids at Koke Mill through Memorial Medical Center, and we thought it might help Grace ...
Fridays Are For Fun!
Fridays Are For Fun!
a-grace-filled-journey.blogspot.com
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The New Adventures of Flat Gracie
If you follow our Grace-Filled Journey on Facebook, then you've noticed one of our latest ideas to raise awareness for INAD, the Adventures of Flat Gracie. And we wanted to take a few minutes to tell you a little more about our latest endeavor. Grace is so ...
The New Adventures of Flat Gracie
The New Adventures of Flat Gracie
a-grace-filled-journey.blogspot.com
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Looking Back at 2018
Mother Nature dumped about eight inches of snow on us this weekend, and I have to say it was nice to have an excuse to stay home all weekend long. We enjoyed snuggling and playing with the girls. Grace and I are almost finished reading the last of the Harry...
Looking Back at 2018
Looking Back at 2018
a-grace-filled-journey.blogspot.com
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The Pursuit of Happiness
This week marked four years to the day of the worst day of our lives. It was the day we found out Grace had INAD. And although so many things have changed since that day, I can remember every single detail of that one day. It started off like any other day....
The Pursuit of Happiness
The Pursuit of Happiness
a-grace-filled-journey.blogspot.com
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Barbeque And Better Days
We've been pretty fortunate when it comes to doctor visits with Grace on our journey with INAD. Grace has been remarkably healthy despite this terrible disease, with just one one-day hospital stay in the books so far. We still see Dr. Ishmael at Litchfield ...
Barbeque And Better Days
Barbeque And Better Days
a-grace-filled-journey.blogspot.com
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Fair With a Chance Of Mini Donuts
While she may not be able to tell us, we know that the State Fair has always been a special place for Grace. She received her AmTryke from the Springfield American Business Club at the State Fair. She got her picture taken with Queen Summer Robbins at the S...
Fair With a Chance Of Mini Donuts
Fair With a Chance Of Mini Donuts
a-grace-filled-journey.blogspot.com
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