Profile cover photo
Profile photo
Interstitial Cystitis Network
140 followers -
Interstitial Cystitis Network - Educational articles, videos, blogs, patient projects, diagnosis, treatments, IC, Bladder Pain, Urgency, Frequency, Hunner's Ulcers, Ketamine,
Interstitial Cystitis Network - Educational articles, videos, blogs, patient projects, diagnosis, treatments, IC, Bladder Pain, Urgency, Frequency, Hunner's Ulcers, Ketamine,

140 followers
About
Posts

Post has attachment

Post has attachment
The Interstitial Cystitis Network now offers three new memberships for patients who would like to receive our cutting edge patient magazine! Learn more here! https://www.ic-network.com/summer-2017-ic-optimist-now-available/
Add a comment...

Post has attachment
The 2017 IC Awareness Month campaign kicked off September 1st focusing on the desperate need for pain care for many interstitial cystitis and bladder pain patients who have been denied pain treatment and/or kicked off of their opiate medication despite the fact that they are using it safely, in low doses and with no signs of addiction. https://www.ic-network.com/icbps-awareness-month-2017-kicks-off/
Add a comment...

Post has attachment
Dr. Christopher Payne offers his course on interstitial cystitis and bladder pain syndrome from the 2017 AUA meeting. In this fabulous presentation, he discusses his approach to subtyping IC patients. This is a fabulous presentation and well worth watching! https://www.ic-network.com/dr-chris-payne-presentation-icbps-aua-2017/
Add a comment...

Post has attachment
With the now clear understanding that interstitial cystitis is a syndrome rather than a disease, researchers around the world are working to develop a new subtyping system to help improve patient diagnosis and treatment! This is very good news! https://www.ic-network.com/new-icbps-phenotyping-system-proposed-input/
Add a comment...

Post has attachment
In two weeks, the Bridge For Pelvic Pain is welcoming chronic pelvic pain patients and providers to their annual conference. Learn about chronic pelvic, sexual and genital pain, and integrative treatments from presentations by doctors, physical therapists, counselors, wellness experts and patient advocates. https://www.ic-network.com/pelvic-pain-conferences-brings-national-experts-colorado-september/
Add a comment...

Post has attachment
One of the most promising lines of research in urology today is the study of the biome, the diverse population of bacteria and fungi that live harmoniously in the human body. In previous MAPP Research Network studies, interstitial cystitis / bladder pain syndrome patients were found to have high levels of candida/fungi in their urine during flares.(1) Another found that IC patients are deficient in some important bacteria in our bowel while having higher levels of other harmful bacteria.(2) This latest MAPP Research Network study now links changes in fungal communities with the symptoms of urinary urgency and pain.(3)

https://www.ic-network.com/mapp-research-network-study-finds-fungus-urine-might-linked-urinary-urgency-pain/
Add a comment...

Post has attachment
If you miss your coffee and are frustrated with its ability to irritate your bladder or gut, we have three new, exciting ones for you to try from The Bella Rosa Coffee Company. For many years, we all assumed that it was the overall pH or acid level of coffee that was the trigger for our symptoms. However, research by Dr. Takayuki Shibamoto, Distinguished Professor at the UC Davis Department of Environmental Toxicology, has found that one specific acid, chlorogenic acid, causes the majority of acid irritation and bitterness seen in most conventional coffees.The secret to calming acid sensitivity is to look for a coffee that is low in chlorogenic acids.

https://www.ic-network.com/bella-rosa-coffee-company-produces-remarkably-low-acid-coffees-new-coffee-option/
Add a comment...

Post has attachment
Interstitial Cystitis Network founder Jill Osborne faced an urgent hysterectomy for uterine cancer. She shares her story! https://www.ic-network.com/fine-wasnt-jills-journal-icn-support-line-reduced-hours/
Add a comment...

Post has attachment
Calling all men with pelvic pain, urinary discomfort, interstitial cystitis and/or bladder pain. If you’ve been told that your pelvic pain is the result of chronic prostatitis, you are not alone. If you’ve spent hundreds if not thousands of dollars on various “prostate centric” antibiotics and other prescriptions, you’re in the company of millions of men who, it turns out, may not have had prostate or infection problems at all.https://www.ic-network.com/pelvic-pain-in-men-is-not-prostatitis/
Add a comment...
Wait while more posts are being loaded