Cooper was born 4 weeks early in Spennymoor, Durham. He has no diagnosis or explanation of what is making him poorly. He is 7 months old now and cannot make a sound to tell us anything. His world is a quiet one.
I have a very rare debilitating degenerative neurological disease called CDKL5. There are less than 800 cases worldwide. This disease causes me to have multiple severe learning disabilities that affect me in every part of my life.
We are from Lower Hatton in Staffordshire. After my wife had two ectopic pregnancies over a two year period we were desperate to have children. We privately funded IVF treatment after we found that the NHS would not fund us because we lived in the wrong post code area.
Riley from Frinton on Sea in Essex is 4 years old and has Spastic Diplegic Cerebral Palsy with Dystonia and chronic lung damage. During pregnancy Riley was born not breathing and needed resuscitation. This lack of oxygen caused brain damage resulting in cerebral palsy.
Evie from Burgess Hill in West Sussex has a post traumatic eating disorder.
When she was an infant she suffered from reflux so would cough and vomit after feeds, causing a lot of pain and discomfort. She also had allergic reactions to lots of foods which was very unpleasant and had several hospital admissions requiring her to have a feeding tube inserted as she was not eating and drinking. These things led to her becoming very fearful and anxious about food.
My beautiful Vinnie from Chelmsford in Essex has plagiocephaly and brachycephaly and since birth it has worsened every day. He didn't have the best start as we were in hospital for 2 weeks on and off because of an infection in his lung.
Keir is 10 from Crediton in Devon. He's blind, he can't walk nor talk. He has profound learning difficulties and finds it hard to cope with many everyday situations.
We're raising money for Tree of Hope to support his Mum to train in the Anat Baniel Method. This is a neuroplasticity based approach that focuses on the child's brain, waking it up to create new connections. This can lead to breakthroughs in movement, thinking, self-regulation, and connection with others.
Hi, my name is Damian. I am a father of a 19 months old boy who was born with a broken collarbone and damaged neck muscles. My wife and I tried everything to improve the movement of his muscles.
The day my life and my family changed was the 31st January 2012. Hubby went work, two girls went to school and I did the house work. Then, about four the phone rings, so I say hello and all I got was, “Mum, it's Courtney, she has been hit by a bus.”
Mason is a very happy, energetic, intelligent and cheeky 6 year old from Doncaster. He was born with a very rare genetic condition called Lebers Congenital Amaurosis, which means that he was born blind with no light perception. Mason’s world is black. However, this does not hold him back. There is nothing in this world that Mason doesn't believe he can do.
On the 15th of May 2015 it was a year to the day since Noah underwent SDR surgery in St Louis at the hands of Dr Park.
Noah’s journey is a long journey of gradual improvement but in the last year he has gone from strength to strength. Noah is much more comfortable, his sitting has improved immensely and the young boy who couldn’t be left on a bench on his own a year ago can now support himself just fine. The distance Noah can walk in his frame has increased dramatically, and more importantly the quality of Noah’s walking technique blows his previous ability out of the water.
Read more: http://www.treeofhope.org.uk/1-year-since-sdr/
Our mission is to transform the lives of sick children and empower families.
Tree of Hope offers hope to the families of sick and disabled children in the United Kingdom and Ireland who need specialist medical surgery, treatment, therapy and equipment in order to free them from suffering, giving a better quality to their young lives.
Tree of Hope is passionate about improving the health and lives of sick and disabled children resident in the United Kingdom and Ireland by providing and assisting in the provision of grants to enable them to obtain medical surgery, treatment, therapies and equipment which would not otherwise be available to them.