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Marci Scher
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43 followers
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Inspiration/Hero
Inspiration/Hero
mlsbks0422.blogspot.com

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The Huffington Post
Not enough words or ways to say thank you to  Mark Brodinsky  for sharing Ian's story as the 1st Sunday Series...as I said at the time with Mark, it is all about education, getting it out there...letting people know...well thank you again Mark and the Huffi...
The Huffington Post
The Huffington Post
mlsbks0422.blogspot.com

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Thanks To The Men In Blue (Brian)
Last week, I know I’m lazy in getting this posted, yet
another amazing event happened for Ian that will just add to the many wonderful
memories we have been building together. 
Thanks to the effort by our good friend Tzvi Haber, of Chai Lifeline, he
was som...
Thanks To The Men In Blue (Brian)
Thanks To The Men In Blue (Brian)
mlsbks0422.blogspot.com

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The Lonsmen Ride
Today was one of those days to put down in the books.  After months of preparation, emails, phone calls and meetings; signals determined...it was here.  Thru  Tzvi Haber of  Chai Lifeline and Mark Lobel of the  , Lonsmen motorcycle club, Ian got a ride. It ...
The Lonsmen Ride
The Lonsmen Ride
mlsbks0422.blogspot.com

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Leveling Out
Since Tuesday night, Ian has leveled out, Tuesday evening around 6:00, we were able get Ian off of the oxygen. He has not had to go back on since then, had a few good nights sleep as well as gone to school Wednesday and this morning. We are hoping last week...

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Rough Nights - Possible "New" Normal
The last few nights have been rough for Ian...well for the most part he is sleeping through them ... his saturation levels have dropped below what doctors as well as us are comfortable with...his levels should not go below 92-90, once this happens for about...

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New or Old SMA Family....
B4SMA Ptions recently published another video. This one is earmarked for newly diagnosed families. It was a beautiful video, the words stuck me....this hits home regardless of being a newly diagnosed family or an "old" diagnosed family.... Yesterday, we rec...
New or Old SMA Family....
New or Old SMA Family....
mlsbks0422.blogspot.com

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The Funny Little Man
This is a bunch of things Ian has done over time...I started this entry for me to be able to remember some of the funny things he does. We all know our kids do things and we want to remember them, well knowing Ian will eventually pass, I wanted to make sure...

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JUST ANOTHER DAY AS A CHILD LIFE SPECIALIST
A wonderful article by our wonderful Child Life Specialists....Beth....we are grateful she is a part of our village along with the staff at Gilchrist....thank you. It’s just another day as a child life specialist. A child, trached and vented lies on his cou...
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