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Emily Graves
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49 followers
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Join the conversation, please.
In   How to Be a Good Mommy When You're Sick: A Guide to Motherhood with Chronic Illness , I wrote: My mission is to find every possible tip and trick to make chronic illness and motherhood as joyful as healthy mothers who do not have to juggle medical issu...
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Saying No to “Woe is Me”
I recently went for one of my infusions and started thinking
about how thankful I was that I remembered my earbuds. This routine of keeping earbuds with me as a
back-up plan for all appointments – especially long appointments – has had a very positive impac...
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Of Roller Coasters, Kites, and Keeping the Main Thing the Main Thing
[My son and his "girlfriend" (AH!) talk while their kite, far overhead, tugs at the edges of their perception.] Does chronic illness consume too much of your life? At
times, it has in mine. I never consciously decided to let it take up more and more of my t...
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A Normal Day
Today
was the most "normal" feeling day I have had in such a long time. So
long that I can't remember. I am always working on improving my endurance,
eating for health, taking my medicine while fighting to stay off prednisone,
etc. and today it seemed that ...
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Kitchen Redo Part 1
I
have a reputation for biting off more than I can chew. I really can’t help
myself – if I decide that I want to do something, I do it! This is the case
with our kitchen, and it all started with the floors. If pulling one plank of
the fake wood floor was ea...
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It’s going to be a circus!
Summer
is here - I hope you are ready.  I’m not going to lie, I really appreciate
Will’s school and he loves it. It is a healthy break each day from each other. He
is too young for camps to be worthwhile. Last summer we tried British Soccer
Camp - an hour a...
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Learning from Will
We all know to watch what we say around our kids – no “bad”
words or anything that adults obviously don’t want their kids repeating in
public. But, what about the things we say that are not “bad” but just part of
life. Sometimes my son makes me really aware...
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Hi. I am Emily Graves.
February 26 was my last blog
post and I will do better. You see, I have run into a strange spot. After years of
being sick and working so hard to fake it - I am having a hard time owning it.
It seems that I have almost convinced myself that the sick person ...
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Happy Coming Home Day!!!
Four years ago today, on my 30th birthday, we brought Will home for the first time. What an amazing gift! We had gained almost 4 pounds in the 60 days he lived in NICU starting at just 1 lb 15 oz. Now he is running and swimming and writing his name just lik...
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